I hurt every day myself but when im flaring its different , i feel more like im having a virus / flu, i feel more as if i have feverish feeling going .And my children know to lol so they even they act better lol, but point is its a totally different, you will know honestly. ( Gentle Hugs )

I have 2 types of pain. Achey pain and sharp shooting pain. I am ALWAYS achey, I have learned to function through my everyday life on achey pain. When I get a flare I will sometimes just fall to the floor, or not be able to breath because the pain is so bad. The pain is like aweful electricity through a certain part of my body

when I am in a flare ALL of me hurts not just certain places or areas, I am more sensetive to light and sound and even smell ,everything is worse and not much seems to help

Trust yourself, you dont need anyone to tell you when your having a flare, You know. Trust in yourself.

I ache everyday but a flare for me is really bad headache, hives, red hot feeling, joint pain,dry mouth, really painful dry eyes,. The worst is my skin feels like a my skin from top to toe was a blister and its popped and the raw skin underneath is the pain I feel. My partner touches me and I feel like electric shocks and a knife digging into my muscle it so sensitive. I sometimes wake up with this painful condition and fight for my pain killers before I can do anything.
But that's life and you have to keep going. Fight through the fog and everything that comes with itx X X
Times were I carnt comb my hair coz to painful and even really hard to get dressed I feel so weak.
It is deffo a fight. It's not going to control me accepting it is moving on and living with it with adapting.