Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Torquay, UK

I've been getting this for the past 5-6 years, it's painful & my old doctor offered not help at all. I've not presented to me my new doctor with this yet but I will be as it's happening a lot.

March 24, 2016
 · 
Be the first to react

Answer Summary

Members shared their experiences with Raynaud's syndrome alongside fibromyalgia, describing painful color changes in their hands and feet that... Read more

Members shared their experiences with Raynaud's syndrome alongside fibromyalgia, describing painful color changes in their hands and feet that turn white, blue, or purple, along with numbness, tingling, and extreme pain when circulation returns. Several members found relief through calcium channel blockers like isradipine, keeping extremities warm with gloves and slippers, and avoiding cold exposure, though many noted their doctors offered limited solutions beyond staying warm. A recurring theme was the frustration of managing this painful secondary condition, with members supporting each other through shared understanding of the daily challenges it brings.

A MyFibroTeam Member

With fibromyalgia it is usually a secondary condition to something else,usually if you have fibro you end up with a duel diagnosis. I explain it best in my blog at myword.live I wrote an article about fibromyalgia after much research

March 24, 2016
A MyFibroTeam Member

Yes I suffer WITH it..SUMTIMES my hands change colour & fingers go white & also my FEET can change COLOUR .was aa prescribed blood pressure tablets 4it.
but it didnt seem to help .x

March 24, 2016
A MyFibroTeam Member

Dear Wayne Frost:I too suffer from raynauds:it also another lovely issue that goes right along with the fibro:( it's worse in the colder months I once thought I had perminant frostbite !my hands are usually cold as are my feet!they turn kinda white then blue and then purple and back to red.its very painful. They also tingle a lot .i also have a job where I am in and out of a sub -zero freezer all day!so yes brother I feel your pain!doctors1&2suggested I get a different job!easy for them to say! No easy answers for this except keep them warm,moisturize.

March 24, 2016
A MyFibroTeam Member

I do. My hands and feet lose all circulation and turn so white it seems like you can look through them. It is such an awful thing. It hurts very bad when circulation comes back. My doctor knows i have it but said there was nothing that could be done about it. The only thing she offered was to keep my hands and feet as warm as possible.😟

March 24, 2016
A MyFibroTeam Member

I suffer from Raynaud’s disease and am on strong calcium blockers which help a lot xx

October 17, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭

IBS

A MyFibroTeam Member asked a question 💭
Oracle, AZ

A MyFibroTeam Member asked a question 💭
Aberdeen, UK