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A MyFibroTeam Member asked a question 💭
Pleasant Valley, MO

Those of you with chronic exhaustion, I'm talking about semi homebound and in bed alot. How do you cope?

January 17, 2016
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Answer Summary

Members offered compassionate strategies for coping with chronic exhaustion severe enough to be semi-homebound, emphasizing the delicate... Read more

Members offered compassionate strategies for coping with chronic exhaustion severe enough to be semi-homebound, emphasizing the delicate balance of doing small tasks without overdoing it, as both extremes can worsen symptoms. Several members shared practical tools that have helped them manage daily life, including therapy and counseling for emotional support, meditation and stretching, creative outlets like writing or crafting, using a crockpot for easy meals, and medications like Nuvigil for fatigue and brain fog. A recurring theme was the importance of self-advocacy with doctors, breaking tasks into manageable pieces, resting without guilt, and finding hope in the fact that bedridden periods can improve over time.

A MyFibroTeam Member

Don't give up! I try to do as much as I can in small bits. If I do too much it makes it worse, if I don't do anything it makes it worse. I am trying to find a good balance, but it is hard. I would also recommend seeing a counselor to help you cope. Mine has helped me tremendously!

January 17, 2016
A MyFibroTeam Member

@A MyFibroTeam Member. I'm so sorry I did misunderstand. I read where someone in the site said that the mayo clinic said we don't need narcotic prescriptions. I can't remember the reason. I agree with you and disagreed with her. I think they have a place. I had a dr tell me after I had been prescribed them and she was a new dr, that she wasn't going to risk her license because her mother has fibro and she was working. Like, good for her. She was only at that pain clinic for 2 weeks. I was glad because after her was the dr that helped me the most. And I agree with you. Everyone is different so different things work for everyone. I think you should have a meeting if you are up to it. Some of the stories I've read in this sure are heartbreaking. And it doesn't have to be that way. Please let me know what happens. God bless you my friend. Hugs-Em xxxx

January 18, 2016
A MyFibroTeam Member

Wow that's a real healer. My 15/min. Psychiatrist was good all I had to do was ask and he gave me free samples of Nuvigil to try. I'm glad I asked some times you have to be your own advocate. I find it amazing that hardly anyone here has tried this med !

January 18, 2016
A MyFibroTeam Member

I'm open minded I try something if if isn't working after given a chance then I move on and just as important I wait after 4 months to see if it is placebo effect.

January 18, 2016
A MyFibroTeam Member

Besides meds and therapy, I cope through stretching and meditation, something called "tapping" that I learned from 2 psychologists, and then distraction, distraction, like reading, easy crafts, and a creative outlet. For me it's writing, for others it's knitting or blogging. The New York T just published a good op ed piece on how journaling every day has been shown to reduce stress, anxiety, and chronic pain. Stuff like that keeps me going.

January 18, 2016

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