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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Columbus, OH

Does anyone else get hot or cold flashes during the day and how do you deal with it. My main issue is hot flashes. Sometimes after a warm shower I will be hot for several hours afterwords. I have tried taking a colder shower but this doesn't always seem to work. Then for some reason I will get cold with goosebumps all of a sudden.

January 14, 2016
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Answer Summary

Members shared widespread experiences with hot and cold flashes, with many noting that fibromyalgia can intensify these symptoms alongside... Read more

Members shared widespread experiences with hot and cold flashes, with many noting that fibromyalgia can intensify these symptoms alongside hormonal changes, menopause, or thyroid conditions. Several members offered practical strategies, including using fans, drinking cold water, layering clothing for easy adjustment, ending showers with cooler water, wearing cotton fabrics, and exploring hormone therapy or vitamin D supplementation under medical guidance. A recurring theme was the unpredictable nature of temperature regulation in fibromyalgia, with many members validating that these sudden shifts are real, frustrating, and often dismissed by doctors who attribute everything to fibro.

A MyFibroTeam Member

My doctor told me that my vitamin D levels are extremely low and that can also cause the hot flashes. So I am now on 5000 IU's of D3. So far I have more pain in my legs. Feels like bone pain.

February 9, 2016
A MyFibroTeam Member

I'm also getting some kind of a temperature changes. Sometimes I will get so hot and then I will be cold in a few minutes. Don't know what's causing it.

February 2, 2016
A MyFibroTeam Member

Fibro is a crazy syndrome, it can affect people differently. Our nerve system sends all kinds of quirky signals to our brains. We have a hyper vigilant nervous system. Hormones can also cause hot flashes, I don't know how old you are but men go through change of life too and it could be male peri-menopause. I keep a fan close by even in winter! I sleep with just a sheet on me and wear only cotton cloths year round.

January 15, 2016
A MyFibroTeam Member

At the end of my shower I turn down the hot water..I keep the water warm. I stand in that for a few minutes before getting out and that seems to help with the hot flashes for the most part. I also wear layers of clothing ..to hot take some off...to cold put them back on. At home I wear slippers year round and if I'm really chilly I wear a scarf around the house until I warm up.

January 15, 2016
A MyFibroTeam Member

I also get really hot, have to sit near a fan at work. Sometimes part of me is so hot and other bits cold

January 15, 2016

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