Seems a very common issue for us! The part that ticks me off the most is even when presented with literature, a loved one doesn't bother to read about a condition that will forever affect their lives together. 😡

Yes Yes yes they either act like if you do anything it will make you feel worse or act like you shouldn't feel bad you can't win darned if you do darned if you don't ?

Spouses, family, co-workers-all of the above! With spouses, family or significant others I recommend they read all or pertinent parts of "Fibromyalgia and Chronic Myofascial Pain Syndrome" by Devin Starlanyl, MD' and Mary Ellen Copeland, MA, MS. This is the book that I call the fibro bible. The author is an MD suffering from fibro and thus, she speaks from a place we can all relate to.
Good luck in getting your spouse to accompany you to a doctor visit-I agree that would be ideal! It would give him a place to address his questions (or doubts!)

I have had Fibro for over 20 years..seems unless someone has the condition..its very hard to relate to it..seems family and friends remember I am hurting in short durations...so I know its up to me..to hide away..and get my free quiet time and rest...in any way I can...otherwise I will hear...Oh by the way ca you do this ?? LOL right after talking about Fibro..seems unless you experience any illness..it is just words to another person they really can not relate...that is why I love my Fibro friends..they understand..(( Hugs your way)))..

I feel this way... but like Momma emily said I think it could be to do with guilt, I'm a really busy person... but these past few months I've deteriorated quite drastically.
My husband finds it hard to understand. . Even tho he's said himself it makes sense of a lot of things x
I've got 4 children so I barely get to rest.. hubby at work all day. . So the house has to be just so... dinner on the table. .. but.. I've HAD to explain in manspeak ( a complex language only containing simple words) that I just cannot do it... someday I can ... somedays I literally feel like I've got to crawl out of bed and sort kids out and do school and nursery runs x
To be honest I think it's extremely difficult for anyone to understand ... not just husbands xx