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A MyFibroTeam Member asked a question 💭
New Jersey, NJ

Does anyone feel anxious when they are away from home, like they can't wait to get home, in comfy clothes and be near their bed or recliner?

December 25, 2015 (edited)
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Answer Summary

Members connected deeply over the shared experience of feeling anxious or trapped when away from home, with many describing their safe... Read more

Members connected deeply over the shared experience of feeling anxious or trapped when away from home, with many describing their safe spaces—recliners, beds, and familiar surroundings—as essential for managing fibromyalgia symptoms and conserving precious energy. Several members shared practical strategies for balancing this need for comfort with maintaining social connections, including planning rest days after trips, being honest with loved ones about limitations, joining local fibro support groups, and giving themselves permission to cancel plans without guilt when symptoms flare. A recurring theme was the grief of losing their former active selves and the mental health toll of isolation, met with encouragement from the community to seek therapy, build supportive healthcare teams, and gently push beyond comfort zones when possible while honoring their bodies' real needs.

A MyFibroTeam Member

Yeah I started getting anxiety and panic attacks last year with my Fibro. It's awful.

January 7, 2016
A MyFibroTeam Member

crowds is always an issue with fibro suffers it is not always easy to go out unless you know the people you are going out with or to meet. Join a local fibro group this helps get you used to going out again and all the members understand what you are going through. Sitting in all the time is not good mentally for you you need to try and interact I know not always easy.

January 2, 2016
A MyFibroTeam Member

@A MyFibroTeam Member
your optimism is almost contagious ... think I could ask you to give us some more? my last 2 weeks have been very, very disheartening for me. not only am I not making enough money to support myself, I feel like I've let my co-workers down, my employers down, my family down. I remember the days that I walked into a room ... and I took charge of that room (work purposes) ... now I try to hide & stay out of the spotlight as humanly much as possible.

January 1, 2016
A MyFibroTeam Member

I know just what you mean! I keep wondering what my new normal is. Some days I can do things for a couple of hours and some days I only can function in little chunks of time. I'm still discovering what works. I did put a team together just recently to help me get as healthy as possibly. I have my GP, my counselor, my psychiatrist, a physical therapist, a warm water therapist, a chiropractor, and a massage therapist, and I've been in Weight Watchers since June (I'm working very slowly). I still need to set goals, but I plan to do that after reading The Power of Habit a second time. I have been diagnosed for four years and actually had fibro for 15 years before my diagnosis, so it has taken a while for me to get to this point. I hope that all of us can find our new normals and that these new normals allow us to participate in the really important life events! We can learn to let the other stuff go, right?

January 1, 2016
A MyFibroTeam Member

I dont like going out to socialize with my friends and family. I am embarrassed of what I have become. I have added so much weight, always tired, walk with the cane. I used to be so energetic. All my friends and family say gosh what happened to you? This is not you or fair you used to be so energetic that we couldn't keep you seated. I am seeing a therapist for this

December 31, 2015

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