Answer Summary

Members connected over experiencing twitches and nighttime convulsions related to fibromyalgia, with many describing involuntary movements... Read more

Members connected over experiencing twitches and nighttime convulsions related to fibromyalgia, with many describing involuntary movements that occur when trying to relax or sleep, ranging from random body parts twitching to whole-body sensations that feel almost like seizures. Several members shared that medications like Lyrica, gabapentin, and pregabalin seemed to trigger or worsen their twitching, though some continued experiencing them even after stopping the medications, and one member discovered they had unknowingly broken a finger due to reduced pain awareness. A recurring theme was frustration with doctors who either dismissed the symptoms as normal fibromyalgia, gave conflicting timelines for improvement, or offered unhelpful explanations, leaving members to navigate trial and error with medications while supporting each other through the exhausting uncertainty.