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A MyFibroTeam Member asked a question 💭
Colchester, UK

Hello Everyone,
I have most of the symptoms of Fibromyalgia, including Vitamin D Deficiency and Low Phosphate but I am having trouble getting diagnosed by the Doctor.
They think it's all in my mind, they refuse to acknowledge and understand it.
Can anyone advise on 'how' I can get my diagnosis plz, I'm at my wits end, and can't take much more of this, I'm really desperate. =(
Any advice, tips, would be greatly appreciated.....
Thanks. =)

November 9, 2015
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Answer Summary

Members rallied around someone struggling to get a fibromyalgia diagnosis, with the overwhelming consensus being to see a rheumatologist who... Read more

Members rallied around someone struggling to get a fibromyalgia diagnosis, with the overwhelming consensus being to see a rheumatologist who can perform the specific physical and blood tests needed to diagnose fibro by ruling out other rheumatologic diseases. Several members shared that getting diagnosed often takes years and multiple doctor visits, with some experiencing dismissive attitudes from general practitioners who don't believe fibromyalgia is real, and emphasized the importance of finding a doctor who will listen, believe your symptoms, and commit to treating you rather than brushing you off. A recurring theme was persistence and self-advocacy, with members encouraging the poster not to give up, to seek out pain specialists or functional physicians if needed, and to remember that while a diagnosis doesn't take away the pain, it opens the door to treatment options and validation that what you're experiencing is real.

A MyFibroTeam Member

go to a rheumatologist. That's who diagnosed my fibromyalgia. If you can't find a rheumatologist in your area, try the Provider Directory above. if you can't get to a rheumatologist, keep going to different General Practitioners till you find one that believes you. The days of 'It's all in your head' are over. I don't go to doctors who don't believe my symptoms. That attitude by a doctor will not heal me. It's unacceptable. i go on to the next one. Please feel free to contact me any time. Happy looking! Praying for good results for you.

November 9, 2015
A MyFibroTeam Member

Also, read through this website. Lots of info you need to know.
https://thefibromyalgiatest.com/?p=7006

November 9, 2015
A MyFibroTeam Member

Rheumatologist. Rheumatologist. Rheumatologist. They have a very easy, fairly quick set of physical exam tests and blood tests. Because there is no magic test for Fibromyalgia the Rheumatologist will basically check you for all types of Rheumatologic diseases and by comparing your blood test result with your physical exam results the Dr. will be able to see that you have Fibromyalgia. Or if you actually have something similar but you maybe thought it was Fibromyalgia. Search "Fibromyalgia" on the Mayo Clinic Website and use the tools listed to the left to learn about it, how to prep for you appointment, what to take with you to your appointment, what to ask the doctor, etc.
And if your regular General Practitioner is not providing you the service or care you need then it is time to move on. That doesn't mean it's your fault or their fault. It just means that isn't the doctor for you and the right one is out there. You just have to make your way to him. I've had to change doctors for similar reasons. It's kind of like their method of brushing you off is their way of saying "we're not willing to go down the Fibromyalgia road with you." But of course, they aren't just going to come out and say that. Most General Physicians aren't prepared to get involved in treating a patient with that type of chronic, needy medical condition. But don't despair. They're out there. Talk to friends, call some offices, ask some people on here that live in your area, etc.
My situation was: I thought I might have it, told my GP and he said I need to see a Rheumatologist to figure that out, went to the Rheumotologist, he was great and confirmed it and diagnosed me, we came up with some medicine ideas for treatment, and then shift the prescription medicine treatment over to my GP who I now see every 3 months to check in on my status and meds, etc.

Good Luck!

November 9, 2015
A MyFibroTeam Member

I agree with Sammi. There's light at the end of the tunnel, you just have to find the right doctors. So far, I've had a couple General Practitioners dismiss my fibro as "all in my head" and one actually look towards treating it and rehabing my musculo-skeletal symptoms. I have noticed that doctors in general are reluctant to treat pain, though; they say it's very subjective.

November 9, 2015
A MyFibroTeam Member

It took most of us several years to get diagnosed as they seem to have to rule out all other possibilities first. Some people on this sight seem to be saying that there is a blood test although it's very new and not readily available. As well as a rheumatologist pain specialists can diagnose fibromyalgia, so if you haven't seen one it might be worth going to a pain specialist.

November 9, 2015

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