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A MyFibroTeam Member asked a question 💭
Montreal, QC

I have such a bad memory, that sometimes, I'm talking to someone and I do not remember what I was going to say next and why I was talking about this.

Sometimes, while driving, I'm forgetting where I'm going. By chance, it's just lasting a second or two.

I have a hard time finding some words. I do inversions when speaking two.

Am I alone?

October 4, 2015
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Answer Summary

Members responded with overwhelming support to a question about fibrofog, with many sharing that they experience the same struggles, including... Read more

Members responded with overwhelming support to a question about fibrofog, with many sharing that they experience the same struggles, including forgetting words mid-sentence, losing track of where they are driving, and repeating themselves. Several members described the emotional weight of these symptoms, especially those who love reading and writing, with many saying it feels humiliating or scary and has even affected their ability to work. A recurring theme was relief at not being alone, and some members shared helpful coping strategies like keeping lists, carrying a notepad, and using memory signals throughout the day.

A MyFibroTeam Member

Met with GI specialist today regarding IBS. Here is what he told me. UBS, chronic headache , insomnia, fibromyalgia, ,hyperactive bladder, OCD, personality changes are all classified as Hypersympathetic Syndrome. Syndrome causes increases in adrenaline (cholinergic). IBS=abdominal pain mainly in colon. Prescribed Hyosciamine. A little pill to be taken 1-2 tabs every 4 hours as needed for the cramping, gnawing, grating , "electric" pain in lower abdominal/pelvis. Advises following low FODMAP diet. Eliminate Fructose, Lactose, Fructans, Galactans, and Polyols. Need to reduce amount of foods that can ferment in bowels like fruit juices, certain fruits, fructose, honey, lactose like milk from animals, soft cheeses like ricotta, cottage, mascarpone. Galactans like baked beans, chickpeas, kidney beans, lentils. Polyols like apples, apricots, blackberry, nectarines, plums, prune, watermelon, bell pepper, mushroom, sweet corn and all sweetners that end in -ol like sorbitol, mannitol , xylitol.

Avoid stimulating antidepressants like Zoloft and instead use relaxing (anti cholinergic) antidepressants like and cymbalta.

Stop trying to diagnos ourselves. For medical information go to :

www.pubmed.gov

This is a non commercial site. I explained to him that we go to other sites trying to get information because physicians don't give us enough information. We look for alternative medicines in desperation to stop pain and get advice from support groups because we see specialist only 15 minutes at a time every 2-3 months. He said in regards to supplements St John's Wort is only one valid for mood enhancer. SAM-e not proven effective for mood booster. He said "fibro fog " should be called loss of concentration.

After 2 months of loosing work time and floundering around trying to get answers from physicians I finally found one doctor that I feel has a clue to my treatment plan. I will see rheumatologist in a few days. Will post what he says. Hope this helps.

October 10, 2015 (edited)
A MyFibroTeam Member

@A MyFibroTeam Member I love words too. I love to read and write. My number one goal in life was to become an author and now who knows...

October 5, 2015
A MyFibroTeam Member

I hate this symptom almost more than any! I thought I must be losing my mind when it started! I've always been very articulate & a bookworm. I love words! To have them 'stuck" is so heartbreaking for me & forgetting what I'm saying in conversation is humiliating.

February 9, 2016
A MyFibroTeam Member

Sooo glad I am not the only one! I feel really stupid sometimes because I can't seem to remember anything. I keep lists on my phone now, carry a pad around with me at work and write things down. I make memory signals to help try to remind me if I did certain things. It is really bad and scary :(

January 8, 2016
A MyFibroTeam Member

No!! See what I said to Amy Thomas, but no your not alone!!

October 6, 2015

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