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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Madill, OK

How many of you have suffered alterations in your sex life because of FM? Ours has become dull and mundane because most positions are too painful for me. If we get wild and do something different I usually feel like hell the next day.

August 31, 2015
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Answer Summary

Members opened up about the profound impact fibromyalgia has had on their intimacy, with many describing a complete loss of sex drive, intense... Read more

Members opened up about the profound impact fibromyalgia has had on their intimacy, with many describing a complete loss of sex drive, intense pain during intercourse, and overwhelming fatigue that makes physical connection feel impossible. Several members shared practical strategies that have helped, including side-lying positions to minimize joint pressure, open communication with partners about pain and limitations, consulting specialists in pelvic floor therapy, and reframing intimacy to include non-sexual touch and closeness. A recurring theme was the emotional toll of feeling guilty, misunderstood, or inadequate, with many emphasizing that educating partners about fibromyalgia, involving them in medical conversations, and being patient with yourself are essential to maintaining connection even when physical intimacy changes.

A MyFibroTeam Member

No sex drive whatsoever! No interest at all xx

August 31, 2015
A MyFibroTeam Member

My sex life is the best it has ever been, I think I may be tiring my husband though.He is so considerate and gentle .We have only been married 3 yrs. But wow never been made love to like this before, I think you should perhaps start the lovemaking process yourself and let your other half no when your tired,then maybe go a little longer the next time.Or just cuddle and touch just see if your ready to go further.Not everyone has the same desires or sexual appetite.Go with what you can manage and enjoy.

November 6, 2015
A MyFibroTeam Member

We have found this too - I know everyone feels fibro differently but I find it best laying on my side with my husband behind me and do different variations on this theme. As I can't bear any weight on me at all this is the safest position for me. I feel it more in my back as I have spondylosis in my spine as well as problems with my left hip and arthritis. Do try different things and there's always the option of sitting on his knee on the end of the bed! Take care x

November 3, 2015
A MyFibroTeam Member

I had my hysterectomy young also and have had pain with intercourse every since. The depression and fatigue has really done a number on my sex drive and self-esteem. Fortunately my husband is still here and we will be having our 24th anniversary on Monday.

September 5, 2015
A MyFibroTeam Member

Thank you Forsakenangel. I could not have said it better. My sex life suffered too when first diagnosed with Fm. Hubby and I sat down with my Dr and discussed it, as it was due to side effects from my medication. Not easy to go through. Eventually after about 2years I started being interested in sex again. When you include your partner in everything that you going through, then they understand and being intimate is not about sex only. It's when they see how much effort you put in trying to get the relationship back to normal, that the willing to try as well.

September 1, 2015

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