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A MyFibroTeam Member asked a question 💭
Easton, PA

I've been noticing that my hands and feet seem to get icy cold especially at night. Has anyone had any issues with this? My fingers and feet get so cold at times, I don't even like to touch my own skin with them? I'm starting to wonder if this is fibro related. ?

August 25, 2015
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Answer Summary

Members overwhelmingly confirmed experiencing icy cold hands and feet, with many describing the painful sensation and sharing that they sleep... Read more

Members overwhelmingly confirmed experiencing icy cold hands and feet, with many describing the painful sensation and sharing that they sleep in multiple pairs of socks, use heating pads, or keep blankets nearby at all times for relief. Several members discussed the possible connection to Raynaud's disease or circulation issues like venous reflux, with some noting that doctors had dismissed their concerns or that compression stockings and other treatments provided limited help. A recurring theme was the validation of recognizing this as a real fibromyalgia symptom rather than something imagined, with members encouraging each other to advocate with their doctors while sharing practical coping strategies like diabetic socks, gloves, and layered bedding.

A MyFibroTeam Member

@A MyFibroTeam Member
The support stockings I feel really don't help me. My feet are still cold because my toes are cut out of the stockings. I still wear two pair of socks at night and during the day. The Dr. said it's from poor circulation. But still, dang my feet are cold, do something about it.

April 28, 2016
A MyFibroTeam Member

I have that happen as well.

August 25, 2015
A MyFibroTeam Member

Debradodger, not a problem anytime you reply is a good time . Remember we're "fibromites" and sometimes we just can't do the things we'd like to do . Hopefully your doing well today too, gentle hugs,
Brenda

May 13, 2016
A MyFibroTeam Member

I read information weekly from different sites as well as going on YouTube to see videos on fibromyalgia. The news doesn't really change, some suggestions are changing diet for less pain. Some talk about medicine for treatment, some talk about exercising for relief, or herbal treatments. I don't put a lot of stock in most of it because most things come for a price . I'm like" why should I make someone rich of off my misery ", when a lot of what they're offering isn't going to work anyway. It's my skeptical side . There are some research studies going on in my area that I've thought about but they want you off your meds to try theirs. I'm not going to suffer to be a lab rat. Going w/o drugs for pain to me is equal to suicide and I'm not going there. If I come across anything that I think is useful or beneficial to any of us , I'll post it though.
Gentle hugs and prayers,
Brenda

May 6, 2016
A MyFibroTeam Member

Wow Jamie that was one pair ? I don't blame you for being upset , out of pocket that's a lot for us on a very , very tight income and they don't care ! At this point, I'm just walking as much as I can and when I'm done ...I'm really done ! The aquatic therapy use to help so much but Medicare sees it as a luxury and even though they pay some towards it , I'd still have a co-pay per session and have to pay transportation to get there roughly around $30.00 per session @ 3 times a week ! It's insane because preventative care would help our condition not deteriorate but they'd rather let you deteriorate and then pay to house you in a rehab facility ? I mean go figure ...we live in a no common sense world anymore ! Sorry for my " bitchin session". Take care and stay in touch,
Brenda

May 4, 2016

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