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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Centerville, UT

I guess I am scared to even initiate that process. I am a single mom working full time and living with my elderly Mother. I feel like all I do is push myself to go to work and home. It takes me all weekend to recover enough to do it again the next week. The pain, fobro fog and fatigue are increasing. I feel like if I go on disability I have given up. Has anyone experienced this?

August 13, 2015
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Answer Summary

Members offered deeply empathetic support to someone questioning when to apply for disability with fibromyalgia, with many sharing that... Read more

Members offered deeply empathetic support to someone questioning when to apply for disability with fibromyalgia, with many sharing that applying is not giving up but rather prioritizing self-care and acknowledging the very real limitations of living with chronic pain and exhaustion. Several members shared practical guidance from their own experiences, including the importance of thorough documentation, finding an attorney early in the process, being completely honest about symptoms rather than downplaying them, and preparing financially for what can be a difficult two to three year battle with multiple denials and appeals. A recurring theme was the emotional toll of pushing through work while sacrificing time with family and missing out on life, balanced with warnings about the harsh financial reality of the disability process and encouragement to explore all options including early retirement, state programs, and other medical diagnoses that may support a claim.

A MyFibroTeam Member

I was very fortunate to find an atty (through a local fibromyalgia group) who wanted someone for a "test case" to get disability for FMS. Fortunately, I was the one he chose!! I was in bed, in pain 24 hrs a day. I was unable to work, take care of my teenage daughter, or do anything around the house. Unfortunately, my family thought I was "just not doing what I should". They thought I was doing all this on purpose. During that time, I lost all means of finances that I had, lost my house, lost my daughter's respect, and was living a "hell" of a life. Now, even though I have SS., I am plagued by insecurity wondering what will happen if my SS is taken away or reduced. The stress is very difficult to bear. Fortunately, my daughter and I are back on good terms and I am a part of her life again. That is the most important thing to me!!!

August 13, 2015
A MyFibroTeam Member

I am unable to work since I had back surgery & then got Fibro. If you feel that it is just to hard to continue working then talk to your pain management Dr. to see if he thinks you will qualify for SS disability. If you do start the process for disability know that you need your Dr to back you up & get an attorney. It can still take up to 2 years before you are approved. If you are unable to work then there is no other option other than going for disability. Good luck to you!

August 15, 2015
A MyFibroTeam Member

I was in denial for a long-time about needing to file disability. Now I have run out of the financial resources to go through the process. My 2 cents, start the process as early as possible, unfortunately you will probably have to appeal.

August 13, 2015
A MyFibroTeam Member

Please, do yourself a HUGE favor and not only get everything documented but apply for disability as soon as you can! If you are not at 100% nothing you do will be at 100% and I know from experience that if you don't take care of yourself, you cannot be able to take care of anyone else (your children or your mother).

August 14, 2015
A MyFibroTeam Member

I filed on January but I have many other issues that we are using in place of the fibro. Depression, anxiety, and other ailments that you may suffer from as many conditions go hand on hand with fibro. I was working a split shift of 5.5 hours and during my split I would come home and sleep. Work the rest of my shift and return home exhausted. My memory was shot. Is lost my spelling and easy math skills and I was a wiz at math before. I was getting in trouble at work and my husband and I are now barely making it. I'm trying to find ways to make ends meet. But who is going to hire someone who had no memory, can't spell or keep a train of thought, do simple math, and who suffershould on a daily basis. Employers can only be understanding for so long. I have been denied once and pretty sure my next denial is days away. But going on front of a judge improved my chances considerably. Good luck, have faith, and I hope all goes well for you.

August 13, 2015

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