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A MyFibroTeam Member asked a question 💭
Ottawa, ON

My mind is preoccupied with trying to figure out what is "really" wrong with me, even though Fibro has been confirmed by a GP, Internal Medicine Dr., Rheumatologist and a Physiatrist! I think because there is no test, I think there is a chance they've made a mistake and I have something fixable or reversible. I keep going back to the Dr. And questioning him and I know he's getting frustrated with me. I just can't imagine living like this forever. I'm 41 and want to go back to work and… read more

July 2, 2015
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Answer Summary

Members connected deeply over the struggle to accept a fibromyalgia diagnosis, with many describing years spent hoping for a different, more... Read more

Members connected deeply over the struggle to accept a fibromyalgia diagnosis, with many describing years spent hoping for a different, more fixable condition like Lyme disease, cancer, or arthritis—anything that might offer a clear treatment path or cure. Several members shared that acceptance, while incredibly difficult and sometimes requiring daily recommitment, became the essential first step toward managing the disease, with practical tools including chronic pain management programs, support groups, antidepressants like Lexapro and Cymbalta, and learning to pace activities and listen to their bodies. A recurring theme was the profound grief over lost identity, independence, careers, and social connections, paired with the persistent hope that continued advocacy and questioning might eventually help the entire community find better answers.

A MyFibroTeam Member

I wish non acceptance was the answer. It's not. I have had it for over 20 yrs. I have learned its some thing you just deal with day by day. Some good some bad. I'm sorry you are having such a bad time with it. Just be kind to yourself and listen to your body it will let you know when your doing too much. There will be times you won't be able to just push through. I learned the had way. Now I try and listen to my body more. If I'm tired I try and lay down. I know that's not always possible but think of yourself first. If you don't no one else will. Good luck.

July 3, 2015
A MyFibroTeam Member

I don't "refuse" to accept the diagnosis, but I do question it a lot. I constantly look up other diseases and say, " Could this be MS? Could this be RA? Could I have some kind of cancer? Is this all because I'm overweight? ". I'm always trying to see if this pain was " something else " maybe I could have it cured by some miracle drug, diet, surgery... Anything.

July 3, 2015
A MyFibroTeam Member

I sure hope it isn't so that I have to live with this disease either. I too look all the time for another reason it is what it is. Along the way I have learned to come to an acceptance that I have fibro. Once that took place I was able to gain a relief over my situation. I'm saying that now at times I don't totally accept it, but I know living with a brick on my shoulders is a lot harder. Drop that brick and move on learning how to manage this disease. Best of luck, stay here and get support.

July 2, 2015
A MyFibroTeam Member

I was diagnosed at 46, was mother of 3 worked 40 hrs as office nurse then went to work at night and weekends in homecare.
Ran my home with my husband who worked the night shift 60 miles away, canned and volunteered at the local daycare. It all hit me like a ton of bricks. I would be so tired, so sore that I could cry at times. I began forgetting things, was getting so exhausted I couldn't make it to ball games my kids had.
I too had doubts and still don't know if all the doctors are right but I know I can't work anymore and keep up with things I used to be able to Do without even giving it a thought. I just try to take it a day at a time,
enjoying my good days and resting on my bad days. Being a nurse has been even more frustrating because I keep looking for other reasons also for my symptoms.
Hang in there, fibro does have its remissions.

June 10, 2017
A MyFibroTeam Member

I agree. Acceptance is the key!!!!!!! Be kind to yourself take charge follow your instinct. Fibro is about trial and error when it come to relief what works for me may not work for you Good luck

July 2, 2015

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A MyFibroTeam Member asked a question 💭
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