Powered By
Does anyone else have your legs start shaking on their own and at night you are in pain and have spasmings in your legs?
Answer Summary
Members connected over experiencing involuntary leg shaking and nighttime spasms, with many identifying restless leg syndrome as a possible... Read more
@A MyFibroTeam Member , @A MyFibroTeam Member: You're right about the sleep studies. I think people often blow them off, but when I had mine done it helped me to win my SS Disability case. The tech that was monitoring my results called the in-house neurologist b/c he was afraid I was having seizures despite the fact that it appeared I was sleeping. The neurologist told him that it was my pain receptors in my brain registering a high degree level of pain even though I was in REM sleep. When a neurologist shows proof that you're in deep sleep & your brain is still registering high levels of severe pain, that's pretty irrefutable evidence in favor of you having chronic intractable pain. That's the biggest obstacle for those of us w/invisible pain b/c we can't prove it. But that sleep study helped me prove it. @A MyFibroTeam Member; You should definitely reschedule your sleep study...it could help you in ways you don't even know about yet. Good Luck.
@A MyFibroTeam Member Lol Bump the cat!!!!! My legs have literally thrown my cat clean of the bed smacking him into the mirrors. He is a huge cat 30lbs. plus, Not sure why he continues to sleep at my feet poor guy.
@A MyFibroTeam Member; Ask your Fam Dr (or whomever ordered your sleep study) to give you a copy of their report for your records. They are your records & you are entitled to a copy if you want one (sometimes they charge to print them off, but it's usually nominal & under $1.oo, under $5.00 for sure, but it's worth it. You should keep all of your lab results & test results (like MRI's, sleep studies, etc) in a file at home so you have a copy if you ever need it for any reason, specifically for SSDI, or to get handicapped parking, or for work (if you still work).
@A MyFibroTeam Member, you made me lol at being wired weird! hahaha! I'm a Nurse & was reading the report from a MRI study I had done when they discovered I had a benign brain tumor. After the test I took the report & MRI films to my favorite Dr. that I worked with & asked her to take a look & give me her opinion. On the report it said that I had an "unremarkable parenchyma of the brain", & I scrunched my nose & tilted my head & joked "nu-uh! I have a very sexy parenchyma!" & she started laughing so hard. When you said you knew it was proof that you had always been wired weird you made me crack up just like she did. I bet you're a lot of fun to hang out with!
Thank you @A MyFibroTeam Member! I'm def gonna reschedule now thought it was just another one of those "things" I had to go through to tell me oh its just your Fibro!
@A MyFibroTeam Member: wonder if that is what the specialist who did my sleep study meant when he said on paperwork "Patient has a very unusual brain." At the time I laughed it off, thinking...at least there is proof I'm wired weird. Maybe I should have another sleep study done.
Join
Your Privacy Choices
