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Finding a rheumatologist

A MyFibroTeam Member asked a question 💭
Gridley, CA

My pcp is having a hard time finding a rheumatologist for me to see in our area bc I have already been dx with fibro

June 12, 2015
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Answer Summary

Members connected over the frustrating reality that many rheumatologists refuse to see patients who already have a fibromyalgia diagnosis,... Read more

Members connected over the frustrating reality that many rheumatologists refuse to see patients who already have a fibromyalgia diagnosis, with some reporting it took three months to find a willing provider and others being told the condition is linked to psychological issues. Several members shared creative workarounds, including seeking confirmation from a neurologist or pain management specialist instead, applying to palliative care teams for multidisciplinary support, or pursuing functional medicine and cognitive behavioral therapy as alternative pathways to relief. A recurring theme was the importance of persistence, creative problem-solving with insurance and referrals, and leaning on the community for encouragement when the medical system feels dismissive or inaccessible.

A MyFibroTeam Member

The nurse that returned my call from my PCP recommended a palliative team instead. Had my appointment today with a large team of different kinds of doctors/support. After meeting, sharing history and exam, the team recommended 1) appt with the functional medicine team (impact of herbs I take, acupuncture, etc), 2) cognitive behavioral therapy, 3) appt with neurologist due to prior falls, and 4) adjust two medicines to improve affect. Grateful for the listening, variety of perspectives shared a once and recommendations. Hoping these steps will lead to improved relief. Will continue to share and greatly value your sharing as well. Gratitude.

October 26, 2015
A MyFibroTeam Member

Hi @A MyFibroTeam Member you are not alone. It took my PCP 3 months to find a rheumatologist that would take a fibro patient in all of Northern California. The rheumatologist said it was because it is linked psychological issues. EX. I have PTSD. So I hope it helps.

October 19, 2015
A MyFibroTeam Member

Yes it helps thanks! My problem is I have been diagnosed with fibro a lot of them won't see me because I have.

June 13, 2015
A MyFibroTeam Member

@A MyFibroTeam Member, I am SO glad for you that you had this team evaluation! I hope and pray that, between them, they will be able to help you feel better. Keep us updated! 💮

October 29, 2015
A MyFibroTeam Member

Dr. Zuzana Foster out of San Ramon, CA. She is the best rheumatologist. Sweetest doctor, kind, sincere! Genuinely cares for each patient!

January 26, 2017

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