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A MyFibroTeam Member asked a question 💭
Florence, KY

Does anyone else experience leg weakness to the point you are unable to walk or have to use a walking aid? What do you do to make it better? Has it gotten to the point that you use or have ever had to use a wheelchair?

June 8, 2015
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Answer Summary

Members connected over the challenging reality of leg weakness in fibromyalgia, with many describing the terrifying sensation of legs turning... Read more

Members connected over the challenging reality of leg weakness in fibromyalgia, with many describing the terrifying sensation of legs turning to jelly, causing falls and making walking, especially on stairs or concrete surfaces, extremely difficult or sometimes impossible. Several members shared the assistive devices and strategies that have helped them maintain independence, including canes, walkers, motor scooters for stores, physical therapy in warm water pools, steroid shots for foot pain, and having someone home on particularly bad days. A recurring theme was the difficult balance between pushing through to stay active versus honoring the body's limits, with members emphasizing the importance of going slow, not overdoing exercise, and letting go of pride to use mobility aids when needed to continue living a fulfilling life.

A MyFibroTeam Member

I've fallen several times. My legs feel like jelly and just drop out from under me.

June 10, 2015
A MyFibroTeam Member

I have a walker if I am going to walk too long I use it. I have trouble even walking half a block it really bugs me and I do get weakness in my legs and my arms too. Doctors don't even know or understand. Wheelchairs are ok too but walkers are easier for me. I use public places that provide wheelchairs if I need to look around inside their business.

June 9, 2015
A MyFibroTeam Member

Yes I have weakness nit just in my legs but also in my arms. On the days it is really bad I stay home. I have used a cane but haven't had to have a wheelchair yet. On the days it is really bad I make sure I have someone home with me at all times. I have also had to be carried to bed a few times because I was unable to walk. The best thing I can say is just go slow and take it easy on the bad days..good luck

June 12, 2015
A MyFibroTeam Member

@A MyFibroTeam Member I hope swimming helps! I did my PT in a warm water pool and I do think it helped. My best suggestion is start out slow! Keep me updated!

June 14, 2015
A MyFibroTeam Member

Thank you everyone for all your input! I have never had to use a wheelchair but I do have to use crutches on and off. My legs get weak- and like others said- turn to jello- that was my exact thought the other day! I've also had to be carried due to my legs just not working at all from time to time. Sometimes they just get weak and can't support me. I was going to PT and that's helped but I think the harder I work at my job- the less my legs want to work. Interesting. Thanks again for all the input. It means a lot.

June 12, 2015

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A MyFibroTeam Member asked a question 💭