Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Pittsburgh, PA

Has anyone else experienced twitching? Sometimes it's just my eyes but other times it's in my legs and arms. Also, I have certain spots on my back that are usually numb. Are these Fibro things?

March 20, 2015
 · 
Reactions

Answer Summary

Members widely confirmed experiencing both twitching and numbness as part of fibromyalgia, with many noticing twitches most prominently during... Read more

Members widely confirmed experiencing both twitching and numbness as part of fibromyalgia, with many noticing twitches most prominently during rest in areas like legs, arms, shoulders, neck, and eyes, while numbness often appeared in specific spots on the back, particularly between the shoulder blades. Several members shared practical insights, including the importance of ruling out other conditions like MS or diabetic neuropathy with a doctor, staying well-hydrated (especially when taking certain medications), and managing symptoms with medications like Neurontin. A recurring theme was the profound relief of not feeling alone in these unsettling symptoms, with members offering both validation and encouragement to seek medical guidance for proper diagnosis and treatment.

A MyFibroTeam Member

I think that people who have a lot of numbness might do well to get the possibility if MS eliminated. Fibro is more painful. MS causes more numbness.

March 21, 2015
A MyFibroTeam Member

Oh My goodness YES! Sometimes it wakes me up because it's so pronounces. Eyes not as much but arms and different part of my leg, shoulders and neck.

March 20, 2015
A MyFibroTeam Member

The primary symptoms of fibromyalgia include widespread musculoskeletal pain, severe fatigue, and disturbed sleep. Fibromyalgia means pain in the muscles, ligaments, and tendons - the soft fibrous tissues in the body.

Most patients with fibromyalgia say that they ache all over. Their muscles may feel like they were pulled or overworked. Sometimes fibromyalgia symptoms include muscle twitches and burning sensations. More women than men are afflicted with fibromyalgia, and it shows up in people of all ages. Expert suggest at least 2% of the general population have Fibromyalgia, but it may be as high as 3-6%.

To help your family and friends relate to your fibromyalgia symptoms, have them think back to the last time they had a bad flu. Every muscle in their body shouted out in pain. In addition, they felt devoid of energy as though someone had unplugged their power supply. While the severity of symptoms fluctuates from person to person, fibromyalgia may resemble a post-viral state. This similarity is the reason experts believe that fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS) may actually be the same condition.

Check the TRIGGER POINTS which are used to assess if sufferers have Fibromyalgia here

March 22, 2015
A MyFibroTeam Member

Yes I feel them more when I am resting. I am on 300 mg of the Neurontin 3 time a day how much were you taking.

March 22, 2015 (edited)
A MyFibroTeam Member

Thank you so much, everyone! It's amazing not to feel alone :)

March 21, 2015

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Gloucester, UK

A MyFibroTeam Member asked a question 💭
OKC, OK

A MyFibroTeam Member asked a question 💭
Kildare, IE

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In