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A MyFibroTeam Member asked a question 💭
Johannesburg, ZA

I have a total aversion to the cold, my lips turn blue and my body shakes all over. Generally I wear layers of clothing when the temps drop but I suffer terribly in the winter. Almost like my body does not have the energy to warm itself up. Anyone else have this problem?

March 17, 2015
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Answer Summary

Members enthusiastically connected over their shared extreme sensitivity to cold weather, with many describing how their bodies shake, turn... Read more

Members enthusiastically connected over their shared extreme sensitivity to cold weather, with many describing how their bodies shake, turn blue, and seem unable to generate warmth despite wearing multiple layers. Several members shared practical strategies that have helped them cope, including hot baths before bed, electric blankets, heating pads, thermal underwear, warming the feet specifically to regulate body temperature, and some even considering relocating to warmer climates like Arizona or Spain to escape brutal winters. A recurring theme was the validation of Raynaud's disease or phenomenon as a possible explanation (with one member hilariously reporting frostbite in Africa), the frustration that fibromyalgia brings both cold and heat intolerance, and the deep exhaustion of never feeling warm enough no matter the season.

A MyFibroTeam Member

Yes! I have lived in Florida for 3yrs Now and at Christmas spent 2 wks in Michigan visiting family and my body completely turned on me. The pain intensified and I was constantly cold, no matter how many layers I had on.

April 2, 2015
A MyFibroTeam Member

This winter has been so bad!! Thank God it will send soon. I am already planning on going to my sisters in Florida for a month or so. Hate the cold. The only thing that takes away that bone cold feeling for me is a warm bath.

March 23, 2015
A MyFibroTeam Member

I am extremely intolerant to the cold weather to the point of severe pain. I too live in Ontario and this winter has been so bad that I have stayed home as much as possible. It use to be my hands, feet & butt until the fibro. Now if I get cold, my lower back just screams in pain and I dress in layers too. It happened yesterday after being out for only 15 mins. I actually came home and sat up against the radiator until my heating pad warmed up. The dampness here doesn't help
either.

March 23, 2015
A MyFibroTeam Member

Very much so and I live in upper Northern North Dakota. Would love to get a group together to go to AZ from January - March not just for the heat but to get out of the isolation here.

March 18, 2015
A MyFibroTeam Member

I can't take either hot or cold, any extreme makes my fibro symptoms act up.

March 23, 2015

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