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6 medium

Does anyone else experience pain when sitting, in their buttocks, painful then go numb?

posted about 10 hours ago
A MyFibroTeam Member said:

Hard chairs in restaurants are the worse!

posted about 5 hours ago
5 medium

Can i really have all this and it not be related to something other than fibro or bad luck?

Im going to go on a bit here and i do apologise profusely. I have to go to a new doctor and want to go armed with questions. I have the following going on and then some. It is embarrassing for me and people look at me as if im crazy as i look fine but say i cant do things and dont want to have say "sorry im not well" and then cant tell them what is wrong with me except "i have fibro". So, here goes. Esopheagel Dismotility… read more

posted 9 months ago
A MyFibroTeam Member said:

I was also laughed at pain a pain specialist that i was paying for!!!!! Also a male!!!!

edited, originally posted 9 months ago
7 medium


Hi guys more for the people in the U.K.
Does anyone else have Botox for their migraines?
I have it ever 12 week from my neurologist, just a thought because I see a lot saying they suffer with their head. There is a lot of criteria to meet before coming eligible for Botox for migraine/headache treatment but you can always next time ask you're neurologist.

posted over 2 years ago
A MyFibroTeam Member said:

I have chronic intractable migraine and fibromyalgia. I've just had my second lot of Botox. So far I'm worse not better but will try on the… read more

posted over 2 years ago
1 medium


Does anyone listen to or know of any good podcasts about living with chronic pain or a chronic illness? Maybe something that's positive and inspirational and maybe has useful tips? I know there's lots of blogs out there but reading them zaps my energy so I'd rather listen to something instead

posted over 2 years ago
A MyFibroTeam Member said:

It's a great idea what a great bunch you all are on here. It is so lovely to see cheers Di

posted over 2 years ago
6 medium

botox for headaches

I need help my friends.
Since fibro I started get serve chronic daily migraines and tension headaches plus a new one I think cluster headaches.
My doctor wants me to do botox n my insurance will cover it. But I'm scared to do to it.
I got lidocaine shots in my neck n got kinda sick n had pain for awhile.
I've read that neck pain from other muscles working n headaches r very common side effect n that it's pretty bad. That doesn't sound good.
Has anyone had this done? Any input would be great.… read more

posted about 2 years ago
A MyFibroTeam Member said:

i have problem with ( STERNOCLEIDOMASTOID MUSCLE) i have never know pain like to be with me all the time every day of every hour i suffer with it… read more

posted about 2 years ago
6 medium

Burrowing burning pain?

After the birth of my 2nd daughter I have been getting a burrowing burning pain in on the top of my akin and then it runs deep only on my buttocks and no it's not the sciatic nerve had it tested.

Anyone experience this. Feels like frost bite almost.

posted 4 months ago
A MyFibroTeam Member said:

Have you seen a chiropractor? I’m a L&D nurse, your hips could be out of alignment. This can cause a range of pain in your back and legs.

posted 3 months ago
9 medium

Suggestions to feel better...

Hi everyone,
I’ve been officially diagnosed since July 2018. My neuro had prescribed Lyrica 50 mg plus Botox injections every 10 weeks. 3 months ago my insurance stopped covering my Lyrica arguing I didn’t try all the alternative to Lyrica ( savalla and cymbalta)
My pain is a 9 out of 10 everyday. My neck and head are the most affected by the pain which is debilitating. I decided to pay out of pocket for the Lyrica, but I can’t handle the pain today... I want to see if… read more

posted 4 months ago
A MyFibroTeam Member said:

I've spent a lot of time and money trying to find relief. I know what works and what is a waste of time. Also try looser fitting clothes like stretch… read more

posted 4 months ago
4 medium

Tingling all over back, legs, buttocks, etc.

For the past week and a half, I’ve had constant tingling in my back and skin mainly. Thankfully Gabapentin has been really helpful at controlling this - does anyone else have tingling that stays in one area constantly? Does it ever seem to go away?

edited, originally posted 5 months ago
A MyFibroTeam Member said:

I've had it in my feet. Feels like neuropathy. Gabapentin definitely helps. But doesn't make it go away completely.

posted 5 months ago
6 medium

Hip pain??

Hey there! I'm 24 have had fibro most of my life but didn't know it til this year...
I've been having very, very bad hip, lower back, knee and foot pain. I know fibro causes widespread pain but my hips are concerning me.
My hips are always hurting but sometimes more recent lately, my right hip on the inside groin area, the outside, my lower back and buttocks, my right knee and the inside of my foot and toes ache like I can't describe. It radiates to my toes but it's starts hurting first and then my hip… read more

posted about 3 years ago
A MyFibroTeam Member said:

I agree. Have the hip checked out.

posted 6 months ago
7 medium

What are your performance levels at your best compared to pre-Fibro?

So... I just had to take a walk into the village to pick up some meds from the chemist. I'm having a reasonably good day painwise and think it's maybe a mile or close to it... the weather is wet but not too cold (yet after that walk I'm starting that deep ache in shins, thighs, buttocks and lower back)

Anyway, I started walking and it was quite a smooth and easy gait... at least outward bound... and as I walked I got to thinking and analysing my… read more

edited, originally posted about 2 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member....Thank you for reading exactly into my Spirit and providing validation....I know He did not bring me down this path to abandon… read more

posted about 2 years ago
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