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A MyFibroTeam Member asked a question πŸ’­
Hardeeville, SC
September 21
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A MyFibroTeam Member

Was she a therapist who was trained to counsel pain patients? Otherwise she didn’t understand fibromyalgia. Fibromyalgia is a crazy condition. You can do all the right things and still have pain or go into a flareup. There are things you can do to try to keep it at a low roar. But that’s the best that we can do. HugsπŸ’—

September 21
A MyFibroTeam Member

@AshelyFields Right?! If my therapist did not have chronic pain themselves I have to admit I'd be side-eyeing that advice. If they approached the idea with curiosity first I think I'd be more open to it being a fruitful discussion. Like, am I ever able to get ahead of the pain? Well, with the migraine medication I am prescribed, I take it at the first sign that migraine pain is beginning. That helps it work effectively. That is just one kind of pain though. 😭
Chronic pain seems so hard for people to grasp, if they don't have it.

September 21
A MyFibroTeam Member

Maybe ask your therapist to clarify what they meant. πŸ€·β€β™€οΈπŸ˜…

I definitely think there are things we can do, but the comment without explanation does feel a bit shortsighted.
I think an example could be pacing yourself. Learning to pay attention to cues in your body before things ramp up. For me, facial pain is a quick walk to a migraine- so, I know when I feel it to address tension in my neck and face before it takes me down for the count.

I’m curious how it made you feel when your therapist said that?

I’m in no way assuming what your therapist might have meant or how that felt for you. πŸ™…β€β™€οΈ
But I’ve had my own experience with a therapist whose comments were pretty activating- a bit ableist and also felt blaming to me.
If that were the case for you, even in the slightest, I would recommend heading that off quickly and telling them how it makes you feel.
They definitely want to know and some just aren’t versed in chronic pain or illnesses.

Sending love πŸ’›πŸ’›πŸ’›πŸ’›

September 21
A MyFibroTeam Member

Exactly!! πŸ’› Especially with some symptoms, it’s like trying to get in front of a moving target.

September 21 (edited)
A MyFibroTeam Member

I just said okay. But in my head I was like how? When I dnt even know when it's gonna happen. πŸ€¦πŸ½β€β™€οΈ

September 21

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