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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone else having trouble with work due to fibromyalgia?

A MyFibroTeam Member asked a question 💭
Norwich, UK

Implemented reasonable adjustments like shorter shifts more spread out through the week and such allowed a slightly higher absence % but still my absence is too high basically I'm not nessarsarily incapable of work but I can't work reliably I could lose my job its been worse and more frequent in last 3 months since I had a head injury not sure what to do

September 9
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Reactions
A MyFibroTeam Member

Hi Deejoy I agree with storms comment get on lcwra and look for some remote work volunteer helpline or something like that which is what I am doing and some free training courses to stop you being bored and will keep your mind active just a suggestion good luck ♥️

7 days ago
A MyFibroTeam Member

I have tried most of these I can plan days when I'm not at work but I work in lidl so it's all out all the time and my energy levels are virtually 0-1% all the time I'm signed off for this week as it's caused me to relapse into depression but since not being at work I've had less pain if I resign I'd be sanctioned by universal credit I'm abit lost about it all

September 9
MyFibroTeam

That sounds really exhausting — juggling fibromyalgia symptoms, a recent head injury, and job security worries all at once is a lot. You're definitely not alone in this struggle. Many MyFibroTeam members have faced similar challenges with work reliability, and some have had to make really tough decisions about employment.

Show Full Answer

That sounds really exhausting — juggling fibromyalgia symptoms, a recent head injury, and job security worries all at once is a lot. You're definitely not alone in this struggle. Many MyFibroTeam members have faced similar challenges with work reliability, and some have had to make really tough decisions about employment.

A few things worth considering:

- Talk to your doctor about whether your increased symptoms since the head injury need specific attention — a flare-up in symptoms after an injury is worth flagging with your healthcare team
- Ask about a sick note or medical documentation that formally supports your situation — this can sometimes offer more employment protection
- Consult an employment lawyer or citizens advice service — they can clarify your rights around disability and reasonable adjustments
- Explore whether your employer offers occupational health support — they may suggest further accommodations you haven't tried yet Managing fatigue and pain flares can also help reduce absences over time. Some strategies that have helped others include:

- Planning your day around energy levels
- Prioritising sleep hygiene
- Stress reduction techniques like meditation
- Speaking to your rheumatologist about medication options for fatigue and pain

One MyFibroTeam member shared that they push through work days but have had to significantly adjust life outside of work to cope. It's a hard balance, but small changes can add up.

Losing your job is a real fear worth taking seriously — getting legal and medical advice sooner rather than later gives you the best options.

September 9

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