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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hello Warriors!!! I need some experiences here!

A MyFibroTeam Member asked a question 💭
Saint Peters, MO

I had a GI procedure done on 7/20, in which I had to stand on and X-Ray machine and could barely stand up because my legs felt “like jello” and were “Internally shaking”, and were very week. After the procedure was done, I had to be taken out to the car in a wheelchair, because I knew I could not walk. Woke up yesterday and could not move my leg!!! My knee is the absolute worst part, in which I have to prop it up, rotate ice and heat, and I have a tinazidine (Muscle Relaxer), for my fibro. It… read more

July 24
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Reactions
A MyFibroTeam Member

Oh, no! I'm so sorry you are going through this! I feel very badly about your pain and suffering and I hope you recover quickly. From my experience, a back spasm can cause horrendous pain in the legs. Please keep us updated how you're feeling. 😣

July 25
A MyFibroTeam Member

Esloan, I’m so sorry that this happened to you, I would definitely find a different doctor!

July 24
A MyFibroTeam Member

That’s really awful, so sorry! I’m a retired RN, and that makes my blood boil. It’s hard to advocate for yourself sometimes. I would take a good friend with you to your appointment for sure!

July 24
A MyFibroTeam Member

I hope you can be extra kind to yourself while you are going through this overwhelming time.

July 24
MyFibroTeam

What an exhausting and frustrating experience — especially when you're barely able to walk in and the advice feels completely disconnected from what you're going through. You deserve to be heard and taken seriously! 💙

The combination of symptoms you're describing — leg weakness, knee pain, radiating pain into both sides of Show Full Answer

What an exhausting and frustrating experience — especially when you're barely able to walk in and the advice feels completely disconnected from what you're going through. You deserve to be heard and taken seriously! 💙

The combination of symptoms you're describing — leg weakness, knee pain, radiating pain into both sides of your buttocks, and foot/ankle pain — does sound like it could be connected to a fibromyalgia flare triggered by the physical stress of your procedure. Prolonged standing, stress, and physical strain are well-known flare triggers. Here are some things worth considering and discussing with a doctor who will actually listen:

- Push for a referral to a neurologist or physiatrist who can properly evaluate the radiating pain pattern
- Ask specifically about nerve-related pain — fibromyalgia can cause widespread nerve sensitivity that mimics other conditions
- Document everything — write down exactly when symptoms started, what makes them worse, and how they're affecting your mobility
- Tizanidine works differently for everyone; ask about whether your current dosage is appropriate for a flare this severe
- Ice and heat rotation is a good instinct — heat may help muscle spasms while ice can reduce inflammation

The aquatic therapy suggestion isn't wrong long-term, but it's tone-deaf advice for someone who can barely walk *right now*. A second opinion from a more fibro-informed provider would be strongly worth pursuing.

July 24

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