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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Apache Junction, AZ

I was diagnosed with fibro about 7 yrs ago. I had a lesion on my brain but spinal tap came back normal. Im in pain pretty much everywhere. I get electrical impulses up and down my spine when i move sometimes. Now im having a lot of issues with swelling in hands and feet and redness but no burning and my right hand and fingers and also right ear have been numb for over a week. Im dizzy, confused, lose my balance a lot too. Is this fibro? Does anyone else deal with this? My gp just treats me… read more

February 15, 2018
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Answer Summary

Members strongly encouraged someone experiencing numbness, electrical zaps, confusion, and dizziness to revisit the possibility of multiple... Read more

Members strongly encouraged someone experiencing numbness, electrical zaps, confusion, and dizziness to revisit the possibility of multiple sclerosis, especially since a brain lesion was found years ago and MS symptoms often overlap with fibromyalgia. Several members shared their own experiences of having both conditions, emphasizing that new MRI scans can reveal changes over time, and urging persistence in seeking answers from neurologists despite the frustration of invisible illnesses being dismissed by doctors. A recurring theme was the importance of self-advocacy, getting updated testing, and refusing to accept being treated as though symptoms are imaginary or purely psychological.

A MyFibroTeam Member

I thinks it’s Fibro because I have that on a regular basis...it sucks, but hold in there!

February 18, 2018
A MyFibroTeam Member

Look into the use of CBD for the anxiety and bipolar disorders. It's working for myself, but need the dosage tweaking to get the best out of it. I use CBD BROTHERS but there are others too. Don't get taken in by snake oil vendors. If an offer sounds too good to be true it possible is. Good luck, stay safe

February 17, 2018
A MyFibroTeam Member

A couple of years ago i suffered nausea and dizziness to the point id fall over it went on for over a year. I read diet coke could give you these syptoms same as ms and being a total diet coke addict for over 20 years i decided to give it up. It was really hard but all i drink now is water and i dont get the dizziness and sickness anymore. I think alot of what we eat and drink nowadays has alot to do with our health issues.

February 17, 2018
A MyFibroTeam Member

The lesion on the brain is also a sign of MS. I was diagnosed 14 yrs ago. The fibro started 5 yrs ago. I think you need to see a neurologist to rule out MS as an additional disease Because there is no blood test for MS or fibro it can take us years to solve the puzzle. Suffering all the while and having Drs think we’re just some overwhelmed , nut job women. Invisible illness sucks. Keep asking questions till you get real answers.

February 15, 2018
A MyFibroTeam Member

It really does suck. It’s gotten so bad the past year. My hands hurt so bad that it’s hard to hold stuff. Can’t hardly walk anymore because of my feet. Not to mention everything else. I hate it so much

February 18, 2018

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