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A MyFibroTeam Member asked a question 💭
Manchester, UK

I went to the doctors today and I told him about me falling over or stumbling when I walk or even standing still. He did the relevant checks etc etc. And then he just said " I don't know what's wrong with you". He has asked me to keep a diary for a month and if nothing makes sense after that he will refer me to a neurologist. Has anyone else had an experience like this before?

June 29
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Answer Summary

Members rallied around a post about a doctor admitting they didn't know what was wrong, offering both encouragement and practical next steps... Read more

Members rallied around a post about a doctor admitting they didn't know what was wrong, offering both encouragement and practical next steps for getting answers. Several members strongly advised requesting a referral to both a neurologist and a rheumatologist, explaining that rheumatologists check pain points, range of motion, blood work, and imaging, while neurologists can help explain balance problems. A recurring theme was the importance of self-advocacy, with many reminding the original poster to be persistent with their doctor and not wait too long to get the specialist care they deserve.

MyFibroTeam

Ha! "I broke my doctor" might just be the most relatable fibromyalgia experience ever! 😄 You're definitely not alone in this. Many MyFibroTeam members have shared stories of doctors being stumped or even dismissing their symptoms entirely.

Fibromyalgia can be genuinely puzzling for doctors because it affects so many Show Full Answer

Ha! "I broke my doctor" might just be the most relatable fibromyalgia experience ever! 😄 You're definitely not alone in this. Many MyFibroTeam members have shared stories of doctors being stumped or even dismissing their symptoms entirely.

Fibromyalgia can be genuinely puzzling for doctors because it affects so many systems in the body, including balance and coordination. Stumbling or falling is something others in the community have experienced too. The diary idea is actually a really smart move. Here are some things worth tracking each day:

- When stumbling or falling episodes happen
- Time of day
- What you were doing beforehand
- Pain and fatigue levels
- Sleep quality the night before
- Any medications taken

This kind of detail can really help a neurologist spot patterns that might otherwise be invisible.

The fact that your doctor is taking it seriously and referring you onward is a good sign. Many MyFibroTeam members have found that building a team of specialists who communicate well together makes a big difference in managing symptoms effectively.

June 29
A MyFibroTeam Member

Excellent Laura make sure you are forceful sometimes the Gp can be reluctant to refer you I would tell them that you are struggling and you illness is deteriorating and you need to be seen ASAP rather than filling in a diary first you can do that while you are waiting for the appointment with the specialists hang on in there you will get your answers but be prepared for a fight♥️ xxxx

June 30
A MyFibroTeam Member

Ever heard of Dr M.Scott peck? He wrote the book 'The road less travelled' He also did talks and you can get these on Amazon audiobooks or maybe even YouTube.
I love his work, He was a psychiatrist. The most honest open minded doctor who told it straight.
Doctors don't know everything about the human body. He stated that in his later years of training some patients would be given a diagnosis with a big name so off he would go to Educate himself on this illness that he had no idea about only to find it did not exist. That doctors have a bunch of names for illnesses that are given to patients to calm them down. In his work he openly and honesty stated he had done this himself in his work as a psychiatrist. When someone is hurting or going through a bad time not understanding what's wrong he found this did calm them down. He also wrote that we can train for years have many letters after our names and it all looks so powerful yet it really is not as what we actually know in this huge beautiful universe Could be written on a pin head compared to what we don't know.
I do hope you get some answers sweetheart, I too am a complicated patient. But that's ok, I look at the body like a huge computer and they need constant care to keep them going. I do hope you feel much better very soon ❤️ lots of love Peps 🌺💓🌼❤️

June 30
A MyFibroTeam Member

You got a doctor to say they didn’t know?! That’s like having two blue moons in two consecutive years!

The referral will take at least three months and British GPs are keen on referrals, because they get rid of a patient when they don’t know what’s going on.

June 30
A MyFibroTeam Member

Hi Laura from what I have been finding lately is that the understanding of fibromyalgia to the medical community is evolving in how it is quantified or explained. It seems like more medical doctors are sending people to a variety of specialists to obtain a multidisciplinary approach. Neurologists and rheumatologists tend to be included and they address different things. Its nothing to be concerned about and its a better approach to treating your symptoms than many general practitioners can provide. I hope you get some concrete answers. I wish you the best.

June 29

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