You can do everything right and still trigger fibromyalgia flareups

This disease is definitely brought on by stress and serotonin levels in the brain. Let's get that out of the way for starters.

I had shingles at age 25 due to extreme stress and that was in 1995. I started developing pain, burning in my knees in 2001 and have been living with this burning pain every single day of my life because no drugs help, they only last temporarily but all have side effects.

Now as far as my life goes...I gave up on this disease in 2008 because I got fed up with not being understood or being able to be helped or cured. I went to several doctors only to feel worse about myself because no blood work, x rays or mri's detect this disease and the last time I went to a doctor in 2008 I was told to wear a knee brace and exercise more. The knee brace didn't help at all and exercising makes things worse due to the "pay back for days aftewards. In a sense this has been a living hell on earth for me and I'm finally doing something about it because I have not been able to work a full time job since 2005, I've worked part time or no time and the part time work had mostly been 3 days a week and at night because I can't get up in the morning without my head hurting. Body hurting and more.

I have many other health issues as a result of this disease and probably won't live longer than .y parents who caused this in me. I have 8 out of 10 Adverse Childhood Experiences which takes 20 years off your life if you have 6 or more.

Every one here in this support group must know that mental issues like stress can kill you.

I ENCOURAGE EVERYONE HERE TO GO TO YOU TUBE AND SEARCH FOR THE RICE EXPERIMENT ABOUT, LOVE, NEGLECT AND HATE WITH RICE OR PLANTS OR WATER CRYSTALS/SNOW FLAKES AND SEE WHAT THESE 3 ACTIONS CAUSE TO THEM. ESPECIALLY RICE. I WAS THE NEGLECT AND HATE AND AS A RESULT I AM AFFECTED LIKE SO MANY OF YOU IN HERE. FIBROMYALGIA IS KILLING US LITTLE BY LITTLE SO LIVE YOUR BEST LIFE NOW. I DIDN'T AND WISH I HAD BECAUSE I LOST MY HAIR, WEAR A MOUTH GUARD AT NIGHT DUE TO TEETH GRINDING AND A LOT MORE HEALTH PROBLEMS BECAUSE I LET MYSELF GO INSTEAD OF GETTING THE PROPER HELP I NEEDED LIKE NOT WORKING AT ALL AND TAKUNG IN LIFE'S SIMPLE PLEASURES.

TAKE CARE OF YOURSELF TODAY!

I'm laughing but not at your pain at the way you put the question. Never put your life on pause for triggers. I'd never leave the house. I do what I want when I want until I can't. Then I take a break, Get back on with living. I very rarely read anything. I had to read so much when nursing about other people's conditions. I thought I'm not wasting my time reading about what they say works and doesn't work for an illness they know nothing about. It's had about 9 different names over the years. I know that. The other thing I know is not one person has the same reactions everyone of us is unique. All the foods you are supposed to avoid and all the foods you are supposed to eat. I tried that one. Did not help me in the slightest. I keep to what helps me. No amount of seed helps me, it just ends up giving me more pain in the stomach.
One person may need to sit while working and doing small tasks at a time. That doesn't work for me. Probably because I just want to get out. Nature works for me. I was bedridden for 2yrs after a stroke. I could move slowly. And I am stubborn so being in that situation kinda taught me I never wanted to see a bed again. We are all so beautifully unique it's not a one size fits all illness. Be the beautiful you and do what you want when you can. 😘🌺❤️

@A MyFibroTeam Member

Thank you for your story.
Sending love and support.

I wonder if everyone on here is aware of
how the Adverse Childhood Experiences may impact our lives.

There is a book called “The Deepest Well- Healing the Long-term Effects of Childhood Adversity ”
by Nadine Burke Harris, MD.
(Former surgeon general of California.)
2019.

Also, there is a group called PACES. Connection that posts weekly emails and helps and meetings.

Mentioned Users

A MyFibro...