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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I remember when I was working and I didn't have a care in the world as far as pain goes. Then I was assaulted by a young person I was looking after as I worked with kids in care. She put me in a headlock and ragged me about. I could feel the bones crunching together. And from that moment on I had pain in my neck and back, and then in my legs and feet. Just unbearable pain. Now it's just widespread all over when I have a flare up. But it either starts in my legs or my neck and back and meets in… read more

April 25
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Answer Summary

Members reflected on the emotional question of remembering life before fibromyalgia, with many sharing the specific moments or periods when... Read more

Members reflected on the emotional question of remembering life before fibromyalgia, with many sharing the specific moments or periods when their pain first began. Several members described turning points like physical injuries, infections, or early childhood symptoms that were misdiagnosed for years as migraines or growing pains. A recurring theme was grief for a pain-free past, alongside resilience, with members finding comfort in being understood by others who truly know how life-changing this condition is.

A MyFibroTeam Member

I clearly remember life without Fibro. I have had back problems for many years off and on but Fibro came on in my early 60s with the random and sometimes global pain and debilitating fatigue. I am now 75 and still struggling with both conditions is a challenge for sure. I recently had my third and biggest back surgery. The interplay between back and body pains makes it hard to distinguish and hard to function. But I am blessed with a great medical team and supportive friends and family.

April 26
A MyFibroTeam Member

@A MyFibroTeam Member totally! My sister is a teacher so I’ve seen the teacher tiredness firsthand and it makes sense you’d assume it’s that but I’m glad you know more now

April 25
A MyFibroTeam Member

@A MyFibroTeam Member yeah I know now that it can be pretty hard to diagnose but my diagnosis definitely was waylaid by the years spent assuming my pain in my head/neck/jaw was migraine pain and that the body aches were more of some sort of growing pains that were lingering. I’m starting to doubt I’ve ever had a migraine at this point, I think it’s purely fibro pain plus some standard headaches thrown in on top. Oh well cant change the past

April 25
A MyFibroTeam Member

@A MyFibroTeam Member I think I read somewhere that fibromyalgia is difficult to diagnose. Someone posted about going to the Mayo Clinic and having a lot of blood drawn. Doctors have to rule out many conditions that might have similar symptoms.

April 25
A MyFibroTeam Member

@A MyFibroTeam Member that's a great way to describe how you feel!

April 25

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