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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 5
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A MyFibroTeam Member

The AI answer is good. I would also suggest you ask the question: Do you believe Fibromyalgia is a true medical disorder that has symptoms that can be treated? Ask directly about their knowledge of Fibromyalgia and about their understanding of the disease and how it is diagnosed.
I went through a book about Fibromyalgia symptoms and wrote down two pages of all the symptoms I had that were symptoms of Fibromyalgia and kept a journal for two weeks to convince my rheumatoligist that I had Fibromyalgia. Basically, I diagnosed myself.

April 6
A MyFibroTeam Member

Firstly rheumatology should of accepted your referral and I can see they didn't.I would ask why and challenge it.You can also ask for a referral to neurology but it's a long wait in the UK atm.
It's good that they have pain management available locally but it's unfair leaving you undiagnosed when you have struggled so long 💜

April 6
MyFibroTeam

How can you communicate with your GP to ensure your fibromyalgia is taken seriously?

It's completely understandable to feel anxious about being heard and validated by your doctor. Many people with fibromyalgia have faced dismissive attitudes from healthcare providers, which can be incredibly frustrating.

Here are some Show Full Answer

How can you communicate with your GP to ensure your fibromyalgia is taken seriously?

It's completely understandable to feel anxious about being heard and validated by your doctor. Many people with fibromyalgia have faced dismissive attitudes from healthcare providers, which can be incredibly frustrating.

Here are some strategies that might help:

Be Direct About Your Needs
- Clearly state that you need your symptoms taken seriously
- Explain how fibromyalgia is impacting your daily life
- Ask specific questions about treatment options and support resources

Come Prepared
- Keep a symptom diary tracking pain levels, fatigue, and other symptoms
- Write down your questions beforehand so you don't forget them during the appointment
- Bring any relevant medical records or previous test results

Advocate for Yourself
- If your GP dismisses your concerns, it's okay to ask for a referral to a rheumatologist or pain specialist
- Request information about available resources like patient liaisons or support services
- Don't be afraid to seek a second opinion if you feel unheard

Remember, you deserve compassionate care. If your current GP isn't providing the support you need, finding a provider who understands fibromyalgia can make a significant difference in your treatment journey.

April 5

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