Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do you offer any phisical help like advocasy. . I dont get carers and i cant efford to pay for carer . I

A MyFibroTeam Member asked a question 💭
Hillingdon london

I have no one at all with fybrofog and not knowing IT i cant eaven read post cant fill any frorm ir manage bankinking. I m mostly in 10 out of 10 or 8 pain rate someday fybromyalgya next day this accident nerve injury mayopathy or the fog takes tjrn or somtime all comesup as a team
I m mostly bad bound and tring to divert mind away from untrolable pain managing papper work is 0 i get neal help somtime from neigbour somtime mangd on fruites somtime frozen food .i have not responded… read more

April 2
 · 
Reactions
A MyFibroTeam Member

@A MyFibroTeam Member

Unfortunately, the above reply is from an AI bot based in the U.S. at the company.

All replies on here from MyFibroTeam are not from a human.

The ideas offered do seem possible.
I am US based too.

Is it possible to get a social worker in London to work with you without charge or does your health insurance offer this?

You need that or a church based charity to help you with all this.

Please let us know what you come up with and ask for this help locally now….

April 2
MyFibroTeam

Do you need help finding advocacy support when you're housebound with severe fibro fog and pain?

It sounds like you're dealing with overwhelming pain and fibro fog that makes managing daily tasks nearly impossible. While this platform doesn't provide direct physical help or advocacy services, there are strategies that Show Full Answer

Do you need help finding advocacy support when you're housebound with severe fibro fog and pain?

It sounds like you're dealing with overwhelming pain and fibro fog that makes managing daily tasks nearly impossible. While this platform doesn't provide direct physical help or advocacy services, there are strategies that might help your situation.

Consider asking for help with:
- Having a trusted neighbor, friend, or family member act as an advocate to help with paperwork and phone calls
- Requesting home visits from social services if you're housebound
- Contacting local disability advocacy organizations that may offer free support
- Asking your healthcare provider about social work services that can connect you to resources

For managing fibro fog when you need to handle important tasks:
- Work on paperwork during your clearest times of day, even if it's just 10 minutes
- Eliminate distractions completely when trying to focus
- Break tasks into very small steps
- Ask someone to read letters aloud to you if reading is too difficult

The severe pain and fog you're experiencing may improve with proper treatment. Speak with your healthcare provider about medications that can help reduce pain, which often helps lift brain fog as well.

April 2
A MyFibroTeam Member

Yes i do need help with finding advocacy help if you can help will be a great help i dont have anyonne in neighbourhood or relative

April 2

Related Questions

View All

chest and armpit pain

A MyFibroTeam Member asked a question 💭
Sheffield, England
January 2, 2019

What help do you prowide for fybromyalgya suffers?

A MyFibroTeam Member asked a question 💭
Hillingdon london
April 2

How do I block/unblock another member?
How do I add a photo to an update?
I choose to move on...
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In