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It drives me mad! Especially being thirsty all the time. I am meant to see someone about the possibility of me having sjögren's syndrome next time I see a doctor I will remind them!

March 27
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Answer Summary

Members shared numerous practical solutions for managing the extreme dryness that often accompanies fibromyalgia, with Vaseline emerging as... Read more

Members shared numerous practical solutions for managing the extreme dryness that often accompanies fibromyalgia, with Vaseline emerging as the most recommended product for skin, lips, and even feet (applied with socks overnight), while CeraVe Eye Repair Cream, castor oil, and heavy-duty olive oil cream were also praised for targeted relief. Several members discussed their experiences with Sjögren's syndrome testing, explaining that diagnosis typically involves bloodwork to check for autoimmune markers, salivary gland function tests, and sometimes lip biopsies, though results can be inconclusive even when severe dryness persists. A recurring theme was the relentless nature of managing constant thirst, dry eyes requiring frequent drops (especially for contact lens wearers), itchy skin, and blocked nasal passages, with members emphasizing the importance of fluoride toothpaste to prevent dental decay, increased water intake, and consulting a rheumatologist for proper autoimmune testing.

A MyFibroTeam Member

Vaseline that is the best and probably the cheapest. I've used it ever since I was 14, Around the eyes' you can use it. Don't rub dab. I use a makeup brush or sponge and dab.
Good eye cream... CeraVe Eye Repair Cream, Much more expensive but you do not need much at all. You can use Vaseline all over the body and if you pop it on feet put socks on straight away and wear to bed. The next morning they are lovely and soft. Also vices vapour rub on feet with socks and you can also use on pain points for relief and it warms the feet up as does Vaseline 😘😘😘😘

March 27
A MyFibroTeam Member

Almost all medications have “dry mouth” as a side effect. This I suppose could extend to other areas. The biggest concern with the mouth is the increased possibility of dental decay with the dry environment. Make sure you use a fluoride toothpaste, drink plenty of water to keep hydrated and add a fluoride rinse if decay becomes an issue. I have a secret for the skin…. castor oil. It’s amazing for wrinkles and hydrates everything, including the lips. It’s also very inexpensive.

March 28 (edited)
A MyFibroTeam Member
March 30
A MyFibroTeam Member

@A MyFibroTeam Member
I didn’t request any lab tests. I have Rheumatoid Arthritis which is an autoimmune disease and my rheumatologist orders a series of blood tests every three months. A couple of these tests confirmed Sjogren’s. That was about 18 years ago.
It is best to consult your doctor because from what I have read there are several tests that can be used to diagnose Sjogren's. A Rheumatologist would know what test to order. Sjogren's is also an autoimmune disease.

March 30
A MyFibroTeam Member

Yes, prescribed extra fluoride toothpaste stopped my cavities 🦷

March 28

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