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I just woke up and the second I opened my eyes I just felt like I've had enough of all this. Even though I don't remember what it feels like to physically not have all these symptoms, I do remember what it feels like to not feel so fed up, to wake up and just go about my day not thinking about my body practically every few seconds. It seems like that was forever ago, or maybe it was just a dream, or it was in a movie that I saw.
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Members connected deeply over the question of whether anyone remembers what normal feels like, with many sharing that it has been years or... Read more
At least 30 years. 🥹
@A MyFibroTeam Member I am sorry you feel sick all the time. I guess I do too. It's just a matter of degrees. Some days are a lot better, but still not the same as pre-fibro. That's when I have to try not to get stuck in the black hole thinking about it. Thinking about what the future might bring. Just a few short months ago, I couldn't have imagined where I am now.
I am 54 years old and this has been the biggest challenge of my life. I have battled depression since like forever so being tired is not new to me. But the fatigue I get now hits me like a ton of bricks. In 2019ish I started having back pain, probably because I was a caregiver to my mom. Lots of heavy lifting and bending. Diagnosed with lumbar spondylosis. That’s when I I really started to realize I wasn’t healthy anymore. Now I am just hanging on by a thread lately. Working full time with accommodations thank goodness. But I feel sick all day long.
It's been 13 years now. I remember the way I was with the kids. Playing about and running around. Doing chores around the house and not having to worry what the next day is going to be like. Being able to choose to relax and not have to relax having no choice anymore. Being care free and now having to care about every single move you make in case it causes a flare up.
It's madness. It really is sad and isolating from friends. I don't have friends anymore because I can't do what they do. Can't just plan a date to go somewhere or anything. It's life altering and not for the better or the weak. Everyone on here is so strong no matter what you think. You get up deal with it, maybe have a gripe or a moan but who doesn't, I do it all the time. But you still carry on and keep smiling 🙂
Almost 17 years ago I passed out face first into our bathtub because of horrendous food poisoning. It really busted me up. Within about 2 months my life changed. I was diagnosed with fibro CFS/ME and spent 2 years fighting a continuous flare. By the end of the flare my memory of how I was before fibro was fading fast. Today my normal is constant flares, migraines and coping with my mental health challenges that worsened with the onset of fibro. I am now on disability. Thanks to my great therapist and psychiatrist I have been able to mourn the old me and appreciate the good in the new me.
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