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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 11
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A MyFibroTeam Member

Epstein barr never goes away I think if we got rid of it we would be cured just my opinion

February 19
A MyFibroTeam Member

I had mono in high school

February 19
A MyFibroTeam Member

I was diagnosed with lymphedema during a very extreme flare. The flare put me in the hospital for 16 days. While I was there, my fluids were restricted, I was given furosimide, put on a high protein diet and was treated with lymphedema therapy as well as physical therapy and pain management medications. I was also treated for my other misc. fibro symptoms. By the time I left I was down 25 pounds, back to walking on my own, had tolerable pain levels and I was sleeping 5 hours a night. I continued lymphedema therapy for an additional 4 weeks and my weight returned to normal. Then 8 months later I was back in the hospital with all of the same symptoms and received all of the same treatment. Since that hospital admission the flares have happened at least once a year for the past 3 years. I'm expecting a flare anytime now. Sorry for the long reply just wanted to share my experience.

February 18
A MyFibroTeam Member

I have dry eyes, dry skin and dry mouth. The dentist yesterday told me I need to get checked for Sjogren syndrome

February 12
A MyFibroTeam Member

Hiya 🥰 peps here, I haven't been diagnosed with lymphedema. I do however get thrush in my mouth quite often. I use apple cider vinegar (it's yuk!) Totally nasty to gargle yet I got a nasty one when I couldn't get a thrush tablet so used this for 4 days and it helped so much. Dry eyes yes, Funny you should mention that as it's been so annoying and sore everytime I go out for a walk, My eyes do not stop tearing. I ordered some spray for dry eyes on amazon and wow its so good. I'm going to check the name now. With this fibro comes alsorts of different types of illness adding on the list of things and the list goes on and on.
Lisseau dry eye spray. Works well for me sweetheart
Sending love ❣️ Peps

February 11

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