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A MyFibroTeam Member asked a question 💭
Crittenden, KY

I have been getting nerve pain at increasing intensity, its traveled to my face and i get it pretty much everywhere now. I have gotten an MRI and EMG and it came back pretty normal. Now they want to do a punch biopsy on my arms and legs to test for small fiber neuropathy… is the test even worth it? Should i just experiment with medication and skip the testing for a diagnosis?

February 10 (edited)
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Answer Summary

Members rallied around someone experiencing widespread nerve pain potentially linked to fibromyalgia, with many sharing their own experiences... Read more

Members rallied around someone experiencing widespread nerve pain potentially linked to fibromyalgia, with many sharing their own experiences of sharp, electrical-like nerve pain throughout the body, including in the face, arms, legs, and other areas. Several members discussed medication options, particularly gabapentin, with some finding it helpful while others noted concerning side effects like brain fog, sedation, and newer research linking it to memory loss and dementia, prompting suggestions to explore alternatives with doctors. A recurring theme was the importance of weighing the value of diagnostic tests like punch biopsies against potential treatment options, with encouragement to research thoroughly, advocate for oneself with medical providers, and keep trying different approaches until finding relief.

A MyFibroTeam Member

Yes, I get nerve pain in various different parts of my body and like Sharon, sharp electrical like shocks

February 12
A MyFibroTeam Member

I have neuropathy in my feet from diabetes, but I have numbness in my hands. Also I get sharp electrical stabbing pains randomly all over that hurts and makes me jump

February 12
A MyFibroTeam Member

I’m sorry you experience nerve pain in your face. It’s the pits and for me usually coincides with other symptoms.
Is that the same for you?

My only real suggestion would be to read up on it and also ask your doctor about treatments in the event of a diagnosis.
I’ve had procedures where the “only solutions” are things I’ve tried before or it’s not an option for me. And that can be a rather frustrating experience and waste of money. 🤷‍♀️😅

Good luck to you. I hope you find things to help bring you comfort and relief. Keep us posted, okay?!
💛💐

February 10 (edited)
A MyFibroTeam Member

Hmmmm I have nerve pain too, mostly in my legs and arms.
It's terrible and then my extremities feels like pins & needles
What is strange for me is that it is mostly in my left side 😵

Hope you feel better soon, hugs

February 11
A MyFibroTeam Member

I meet with my PCP on Wednesday to discuss different treatments since the gabapentin is terrible, but i have to ween off of it. Unfortunately things like Nervive don’t help me, they are formulated for mild peripheral neuropathy, diabetic nerve pains, and vitamin B deficiencies- none of which are what is causing my issue. I have tried most OTC nerve supplements- they are pricey and don’t work for me (at least not yet that I have found)

February 14

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