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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone else stuck in bed 98 percent of there time

A MyFibroTeam Member asked a question 💭
Cortland, NY

Omg pain fatigue i don’t have it in me to go to the store - that leaves me ordering food the problem with that it’s trash and super expensive with DoorDash

February 1
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Answer Summary

Members rallied around someone struggling with severe fatigue and pain that kept them bedridden most of the time, offering creative solutions... Read more

Members rallied around someone struggling with severe fatigue and pain that kept them bedridden most of the time, offering creative solutions to reduce the physical and financial burden of daily tasks. Several members recommended grocery delivery services like Instacart instead of DoorDash, Meals on Wheels for homebound individuals, local Better at Home programs for housekeeping and meal delivery, and tools like the Visible app to track energy levels and the spoon theory to pace activity throughout the day. A recurring theme was finding ways to stay nourished and functional without overextending limited energy, with many members sharing how adaptive cooking tools like the Ninja Foodi and recumbent bikes helped them maintain some independence while honoring their bodies' need for rest.

A MyFibroTeam Member

I do but get up to make meals, do housework, so I keep active, do my exercises, go to appts, as you need to live a life to be strong.

February 1
A MyFibroTeam Member

Not in bed but I'm stuck in my recliner with my legs elevated, watching tv, or on the lap top or I phone. I do use my recumbent stationary bike 6 days a week for 1/2 hour

February 2
A MyFibroTeam Member

Our community has a service called better at home. We have a house cleaner 2x a month and two delivered meals. Hoping you might have such a service where you live.
Look up spoon theory This measures spoons of a day to energy used It is great for pacing

Have you been to a sleep clinic. I am missing a whole cycle of sleep

I have to have 3 rest/ naps a day.

Have you tried. Free app so far called visible. It measures energy between heart beats. Very reliable. Great to show your doctor results

February 1
A MyFibroTeam Member

This winter has been rough for me lot things not getting done and lot extra pain.

February 4
A MyFibroTeam Member

@A MyFibroTeam Member I use a food ninja as well- it bakes, steam cooks, air fry’s, and several other functions.
It can drastically reduce cook times and therefore time on my feet. 😊

February 4

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