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Its went from a week every few months Remedied with a nap to being tired all the time. I would still have days it wasn't as bad. Now I fall asleep sitting up. After a full week at work I have to sleep for the 2 days.

October 26, 2024
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Answer Summary

Members rallied around someone experiencing extreme fatigue and falling asleep uncontrollably, with many relating deeply to the exhaustion... Read more

Members rallied around someone experiencing extreme fatigue and falling asleep uncontrollably, with many relating deeply to the exhaustion that comes with fibromyalgia and sharing that this level of sleepiness may signal additional issues like sleep apnea, narcolepsy, or vitamin D deficiency that deserve medical attention. Several members shared practical strategies that have helped them, including sleep studies and CPAP machines, medications like trazodone or stimulants to stay awake, vitamin D supplementation, standing workstations, pacing activities in short spursts with rest in between, and guided sleep meditations. A recurring theme was the profound impact of fatigue on daily life, forcing many to retire early or completely restructure their routines, yet finding comfort in the community's understanding and the reassurance that they are not alone in this struggle.

A MyFibroTeam Member

Thank you to everyone. I don't feel so alone in this.

October 26, 2024
A MyFibroTeam Member

Laura🌷, Yes, Many of us have CFS…Chronic Fatigue Syndrome. I was diagnosed with it shortly after diagnosed with Fibro. It’s one of Fibro’s MANY symptoms😕. Everyone is different ofcourse, but many of us have it

October 26, 2024
A MyFibroTeam Member

I find my fatigue gets worse in the fall. The changing weather, the darkness & lack of sunlight , sleep disturbances …… who know why. The one thing I do (besides eating properly, taking mega vitamins etc) is stand most of the time. If I sit down I’m asleep within minutes, when my husband was alive it drove him nuts! I use a standing station at work but I think I’ll have to retire this year. I also find I get my best sleep from 4am to 9 am so now I work a later shift. You need to find what works best for you. Sending you hugs and best hunting!

October 26, 2024
A MyFibroTeam Member

Hey Laura,
One thing to consider: have you started any new meds recently? I just quit one that had so SO sleepy I couldn't sit down without falling asleep! I couldn't read watch tv, and was afraid to drive.
Otherwise, I do have bouts (flares??) with the fibro that leaves me more fatigued than my normal.
Take care hope you find some good answers! Love,
Deb 😘

October 27, 2024
A MyFibroTeam Member

Hi I am one of those rare males who has had Fibro for 17 years. Dealing with the pain on a daily basis is bad enough but the fatigue is far worst and as others have said it's as you feel like you are drugged all the time. Small task are hard to focus on, or even to get the engery to do them. Don't know when the last time I got through a TV movie or sports event. I had two sleep studies and they found nothing but still refuse to give me something to stay awake. I do take massive amounts of caffeine pills during the day but that often doesn't help. For me the fatigue is by far the worst part of Fibro and I feel for anyone who also goes through it.

October 26, 2024

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