Oh yes my legs and hips hurt constantly, but my elbows have just started, it's a whole new pain, it wakens me in tears some nights. Oh yes my poor hair has become so thin, yes hair loss is my whole head. If I do a ponytail for a short time, it's not much bigger than a ponytail to a five year old hair. It's so thin :( oh my gosh yes my scalp that to is so painful it literally does feel like severe burn, I get tiny sores to as it gets to itching and hurts so bad, that I've dunked my head into sink full of ice water, because it felt like it was on fire!
I've been to countless dermatologist, and was even sent to a psychiatrist because one doctor thought I was mentally hallucinating and loosing my mind. Tried every shampoo and conditioner on store shelves and salons and medicated shampoos that literally told to sleep with a garbage bag over my head, and I said wth will that do? He said suffocate the problem! I said so you saying I have get death?? He said no all the bugs in your head do..I didn't have bugs he was just a A$$!? An I was a inconvenience for him.. so sorry to hear that you to deal with the scalp pain as well , but glad to hear someone else say that their feeling it to, so I know I'm not completely crazy! 😂

I’m so sorry.

Not as much as my hips and legs, but yes. Glad the steroids offer you a little relief.

Is the hair loss all over or mostly on top?

My hair has thinned significantly. But I do have gradual periods where I loose noticeable amounts at a time, those seems to grow back mostly.

My scalp and hair, especially the top, hurt a lot- almost like it’s sore or burnt.