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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Wendell, ID

Is anyone currently dealing with it? Recent eye exam for dry eyes brought up possible Sjogrens disease. Dry eyes & cotton mouth. Saw that 45-55%of fibro sufferers also have it. Waiting for tests.
Wondering what treatments and maybe even vitamins people are using.

June 27, 2023
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Reactions
A MyFibroTeam Member

My eye doc told me to make sure I use the preservative-free eye drops. It's for people who use eye drops multiple times a day.

July 7, 2023
A MyFibroTeam Member

Yeah i have all that

June 28, 2023
A MyFibroTeam Member

I got tested but it was negative and that's why I got the fibromyalgia diagnosis. All my labs were negative and they took a tissue sample from my lip which was also negative. There's a lot of overlap between the two, so it's good to get tested.

June 27, 2023
A MyFibroTeam Member

I have it. My rheumatologist said it may be a mild case of Sjogren's. All of my inflammatory labs came back negative for autoimmune disease. I've had dry eyes on and off for the past 5 years. I take the prescription Xidra for it. The dry mouth developed a few months ago. My salivary glands looked normal on all of the tests I had done. TMJ can also cause dry mouth due to the force clenching and grinding put on the mechanisms of the jaw and mouth. I take Salagen for the dry mouth and use OTC products. Brushing and flossing is critical many times a day to protect the teeth.

June 27, 2023
A MyFibroTeam Member

I have extremely dry eyes! I’ve been using systane lubricated drops, but it doesn’t seem to be as effective as it once was.

June 27, 2023

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