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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
England, NO

How sensitive are your ears? I find sound so disruptive. Causes me headaches and confusion. Makes me feel overwhelmed and stressed. Makes me dizzy and irritable. I mean even putting the cutlery away is something I avoid. People talking loudly or speaking on the phone is overwhelming. My world just gets smaller.

April 22, 2023
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Answer Summary

Members deeply related to the original question about sound sensitivity causing headaches, confusion, and stress, with many describing... Read more

Members deeply related to the original question about sound sensitivity causing headaches, confusion, and stress, with many describing hyperacusis (extreme sensitivity to everyday sounds like cutlery or loud talking) as well as heightened sensitivity to light and smells. Several members shared practical coping strategies, including using noise-suppression earbuds from reputable sources, earplugs for persistent noise, hearing aids that allow individualized volume control, and working out compromises with partners who may not fully understand the condition. A recurring theme was the connection between sensory overload and fibromyalgia or PTSD, the challenge of educating loved ones about invisible symptoms, and the relief of finally having a diagnosis that validates these overwhelming experiences.

A MyFibroTeam Member

Oh good. Good luck!

April 22, 2023
A MyFibroTeam Member

Thank you Vic! I see my doctor in May and I’m going to mention it to him.

April 22, 2023
A MyFibroTeam Member

Definitely. Come to find out I needed hearing aids now that I’m older. You might want to get your hearing checked

April 22, 2023
A MyFibroTeam Member

I've seen adds online for noise suppression ear buds. If I see them from a reputable source, not Amazon, I'll be buying some.

I'm also light sensitive, especially sudden changes in light.

April 22, 2023
A MyFibroTeam Member

The hearing aids are replacements for previous ones.

April 26, 2023

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