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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 18, 2023
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Answer Summary

Members overwhelmingly confirmed experiencing chills, lightheadedness, and sudden leg weakness, with many describing these symptoms as... Read more

Members overwhelmingly confirmed experiencing chills, lightheadedness, and sudden leg weakness, with many describing these symptoms as frequent, unpredictable, and part of a broader pattern of varied health challenges. Several members shared practical strategies, including checking blood pressure during episodes, keeping a journal to track sleep, diet, and activity levels, and adjusting exercise routines to accommodate pain or limitations. A recurring theme was the frustration of living with symptoms that feel random and extensive, yet also a sense of solidarity in knowing others navigate the same confusing and isolating experiences.

A MyFibroTeam Member

I had that a lot last year. Less this year. Hope yours will get better.

February 18, 2023
A MyFibroTeam Member

Have you checked for a low blood pressure when this occurs?

February 19, 2023
A MyFibroTeam Member

Yes
Happens often

February 18, 2023
A MyFibroTeam Member

I do, and it’s weird feeling.

April 5, 2023
A MyFibroTeam Member

Yes. Not sure what it is was. I was light headed, and a weird feeling going through my body just the other day. I didn't know if I could continue standing at the sink. I have had plenty light headed, dizzyness, But, this was concerning. It has not happened again. I keep telling myself, journal, journal what I eat. Hours of sleep, and if I did not sleep at all. I just know that more answers could be found. One thing is a lot less exercise. Had built up to four walks a day with Annie🐾🐾, for the last two years. But my darn compressed disk, is down to 1/3. The pain goes through my pelvis, and down my legs. L5 S1 Compression. We get one decent walk in a day for the last few weeks now. Some days the pain is off the charts. But, I go as far as I can, and then I turn back home with Annie. The heat is back again, in the low 80's most days. This is just February! The heat and humidity is just too much. So we do the longer walk after 9pm to 1 am. I am up with pain, so I get Annie out, to get much needed exercise.

Keep on, keeping on..

Lynda

February 28, 2023

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