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A MyFibroTeam Member asked a question 💭
Merseyside United Kingdom

My employee needs to be aware of the wider issues with fybro not just muscle pain. Some i have read focus a lot on mental health but i would like them to realise the other conditions that are with it . Any help would be appreciated ❤️ie migrain fatigue bla bla bla 🤣the lust could go on

April 26, 2022
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Answer Summary

Members rallied to help someone find resources to educate their employer about the full scope of fibromyalgia beyond just muscle pain, sharing... Read more

Members rallied to help someone find resources to educate their employer about the full scope of fibromyalgia beyond just muscle pain, sharing links to Fibromyalgia Action UK employer guides, a comprehensive list of 251 symptoms, and the Job Accommodation Network (JAN) website. Several members expressed frustration about the constant need to explain that fibromyalgia is not just about pain but affects the entire body, including cognitive function, fatigue, and migraines, with many sharing that they feel dismissed or misunderstood by employers and loved ones alike. A recurring theme was the emotional toll of workplace accommodations, the fear of being watched too closely if mental health aspects are emphasized, and the importance of being honest about limitations rather than hiding behind a smile.

A MyFibroTeam Member

Thank you all for your help I have sent 2 . It is to give them an insight for some reason she thinks every thing is separate issues 😃One I didn’t because it was big on mental health and suicide😳 thought they would be watching me like a hawk 😃

April 26, 2022
A MyFibroTeam Member

I googled Fact Sheet on Fybromyalgia for Employers and a pdf showed up. I can't seem to link it but maybe a search on your end would show the same document? Best wishes!

April 26, 2022
A MyFibroTeam Member

Yeah I get so frustrated being like a broken record retelling people that it is NOT just ALL about pain.
And the "Why aren't you on meds?".
I'm blue blue blue.
And one person I could ask and why are not on meds???
ARRRRGH
I once again told one person close to me , It's not just a pain thing. It's a whole body thing.
Dang .... still don't get any of it.
We need it more visible.
Used to be a commercial on TV for a med.
So many Fibromites were angry with it.
Take this med and you can be like a new person
Abra Cadabra!!!! Voila! A full day and you feel great.
Yeah right!
We need real people talking about it.
Of course it would take a good few. From someone who can manage ok to well to someone who is quite debilitated.

This is the face of Fibro. And so is this the face of Fibro.
Get it ?

April 26, 2022
A MyFibroTeam Member

251 Symptoms of Fibro

https://fibromyalgiaresources.com/list-of-fibro...

April 29, 2022
A MyFibroTeam Member

Here's another useful link.
https://askjan.org/disabilities/Fibromyalgia.cfm

If you look at the different pages, you'll see the list/type of accommodations also.

I am in the process of requesting for accommodatins. It's so daunting. I'm not sure what to put there, how many, .... I'm feeling overwhelemd at this point.😪

April 30, 2022

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