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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Waterloo, IN

I went to the pain specialist today. My weight is up yet again. This is the heaviest I’ve been ever. It makes me depressed. I have been on Lyrica (Pregabalin) for more than 15 years. The weight has increased all these years. We have been changing our diet before I even went to the doctor. Exercise is difficult. But I will try again or maybe find some chair exercises to do. I still have PT exercises I could do. So I just need to make a plan. What I need from you is your opinion about the Lread more

January 20, 2022
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Answer Summary

Members weighed in on whether stopping Lyrica after 15 years was worth it, with most agreeing it is worth trying but only with a very slow,... Read more

Members weighed in on whether stopping Lyrica after 15 years was worth it, with most agreeing it is worth trying but only with a very slow, doctor-guided taper to avoid withdrawal symptoms like brain zaps, nausea, and pain flares. Several members shared that switching to Gabapentin provided similar nerve pain relief with fewer side effects like swelling and mood changes, while others noted that Lyrica was the only thing that helped them function. A recurring theme was that the decision depends on how much the medication is helping, and that working closely with a doctor is key to making a safe and informed choice.

A MyFibroTeam Member

Savella made me suicidal. It made me want to get in my car and drive into a tree, and then it wanted me to jump out of a huge glass window which would have killed me as well. Somehow I had the wherewithall to look up the side effects. I had every side effect. I called the dr. They told me to go to the hospital. They kept me there for 24 hours. I thought they had something to counteract the Savella. No, they were just watching me and then told me to go home and not to take it, Lyrica, which I had already been on before they switched me to Savella, and then they tried Cymbalta which had the same side effects. They then told me I cannot take SSRI class medications. They bad part was each drug put on 20 pounds for a total of 60 pounds. I am way past menopause. I told my husband we looked like I was having a baby, but when???? I still look like I am 9 months pregnant as it is all right in my belly, but my arms and legs are thin. It makes me depressed. I have Hashimotos and I am on thyroid medication. I am type 2 diabetic and so is my husband for which we are on medication. We are to eat no more than 60 carbs for each of 3 meals and no more than 30 carbs for a snack in the early evening. My husband does not gain weight but does not have a thyroid problem. I stay strict to my diet but slowly keep adding weight. My doctor says all my other numbers are good. I am not used to carrying the extra 60 some pounds. My normal weight was always around 142 pounds all my adult life. I am very frustrated. My doctor is not. She checks everything and is very pleased with my numbers for everything and says as long as they are that good, she is not worried about my weight. My grandmother on my dad's side weighed over 800 pounds when they last could weigh her back in the day. My siblings are all very heavy. I was never heavy or gained any weight until the SSRI medications and even though I was only on each one two weeks while they were trying to see what worked, the weight did not come back off even though I had severe diarrhea with each medication. I am on Gabapentin and it helps me a lot. Hugs and prayers to all as it is hard with having so many autoimmune diseases.

January 28, 2022
A MyFibroTeam Member

I used Lyrica for about 5 years it helped but this is when there was no generic and I couldn't afford the out of pocket costs with my insurance. I then switched to Gabapentin and have been on it for years. Both helped my nerve pain and I used to think Lyrica did not help that much but when I tapered off it before starting the Gabapentin I really could tell a difference in my pain levels. I found the Lyrica caused more swelling than Gabapentin.
Nether one seemed to cause significant gain for me but Zoloft sure did. Any of these you need to taper off of very slowly because if you don't you will get brain zaps and other possible withdrawal type symptoms.

January 20, 2022
A MyFibroTeam Member

Yes that's true I couldn't take Cymbalta or Lyrica to many side effects gabapentin I need to try it again after I have taken it many years ago I stopped because I was better then I never have taken them again I was taking lorazepam but the FEDERAL Drug Administration came into the doctor's offices and cleaned up everything they didn't want us patients to have and if you were on pain control medications you can't take another antidepressants and we suffer because others have abused the drugs which is not any of us fault now we can't get what we need because of those people. And so many sued the pharmaceutical industry and nowadays they can't get what they need because they messed us all up. Josephine Phillips.

January 20, 2022
A MyFibroTeam Member

I'm taking 200 mg. twice daily and I tried to stop taking them slowly but it just didn't happen. I'm hooked. It helps me so I'm staying on Lyrica. Out of the question to stop. I enjoyed reading all your posts. Thanks for sharing.
Love always, Evelyn Ann

January 22, 2022
A MyFibroTeam Member

Good morning everyone, wow you all have taught me something about fibro. Yes ma'am I have taken all of that to. But not anymore because I gained so much weight and slept all the time. So now I found out that stress 😩 is the number one problem. So stop the stress and see what happens.

January 21, 2022

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