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A MyFibroTeam Member asked a question 💭
Swindon, UK

Can any one advise me since the doctor has diagnosed me he has given me all sorts of pain killers none of them do anything just lots of side effects . Very bad twitching.hands twitching legs a bad dry mouth all the time funny sensation in the back of tmy throat. I have been on amitriptyline 30 mg and 90 mg of duloxetine you get to a point where you have had enough of the pain and extreme tiredness.and I can be hours on the phone to get appointment. so has anyone came off these meds and are… read more

January 6, 2022
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Answer Summary

Members shared their experiences with managing fibromyalgia medication side effects and exploring alternatives like CBD, with many emphasizing... Read more

Members shared their experiences with managing fibromyalgia medication side effects and exploring alternatives like CBD, with many emphasizing the importance of weaning off medications slowly under medical guidance rather than stopping abruptly to avoid withdrawal symptoms. Several members described their own medication regimens, ranging from combinations of duloxetine, gabapentin, and tramadol to switching entirely to medical cannabis products (CBD and THC), with some noting that CBD alone or low-dose THC helped reduce pain while others found relief through supplements like magnesium and calcium. A recurring theme was the frustration of trial and error in finding what works, the reality that pain management is deeply personal, and the importance of listening to your own body and advocating for yourself when conventional treatments fall short.

A MyFibroTeam Member

Hi

I have coke to same conclusion as yourself. At times nothing works. I have registered with private clinic in London called sapphire clinic they first liaise with your physician and then call you to consultation meeting. They are licensed for medicinal cannabis which has helped many people live a better quality of life. My appointment is in two weeks will update you accordingly For now listen to your body only you know how to manage it well. You are the expert here.

January 6, 2022
A MyFibroTeam Member

Cbd oil is helpful I also take magnesium and calcium which helps. Took me years to get the right pills for me I on tramadol pregabalin duloxtine the amtriptyline codeine and gabapentin didn't agree with me suggest weaning off slowly like suggested and talking to doc as coming off them all together straight away can cause some horrible side effects don't know if this is helpful or nt sorry x

January 6, 2022
A MyFibroTeam Member

what are "New Tabs" ? I live in california where cannibus is legal,, i use edibles ,,very low dose THC but i have to have some THC or the stabbing pain wont stop. It can stop the stabbing pains and quiet it all down quite well at 2mg THC or even 1 with some CBD which is quite low dose. But lately nothing seems to be working for long periods of time. hang in there

January 7, 2022
A MyFibroTeam Member

I choose to only take Cannibas CBD and THC to live as best as I can. I use it exclusive because I decided it was best for me after I ended up checking myself into rehab years ago as the tons of Rxs gave way to severe dependency, so many negative side effects and addiction issues, so grateful to still be alive. For me it is a better version of me then ever I was on the RXs. More clarity of mind and body, though the pain is still very much felt, my ability to rise above it to function “my best normal” is a life saver. The expense is higher than other covered Meds. Good luck with your journey, hope you find something to help you through!💙☀️🤗

January 6, 2022 (edited)
A MyFibroTeam Member

My daughter uses a CBD rub and a CBD patch. CBD doent make you high its the THC.

January 6, 2022

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