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A MyFibroTeam Member asked a question 💭

For about 6 months now I've noticed my hair is thinning rapidly. Plus my scalp hurts, almost like the new hair growth is painful if that makes sense. Is there anything anyone has found to help with this?

December 17, 2021
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Answer Summary

Members shared deeply relatable experiences with hair thinning and loss, describing painful, sensitive scalps that feel tender to the touch... Read more

Members shared deeply relatable experiences with hair thinning and loss, describing painful, sensitive scalps that feel tender to the touch during washing and combing, with some experiencing complete bald patches and others noticing their once-thick hair falling out in alarming amounts, particularly after washing. Several members offered practical strategies that have helped them find relief, including using baby shampoo designed for cradle cap to calm inflammation, applying Johnson's body oil with aloe to soothe itchy scalps, cutting hair shorter to reduce strain, and washing frequently to manage symptoms. A recurring theme was the emotional toll of watching hair fall out, with members expressing solidarity over the frustration of unsuccessful treatments and the courage it takes to accept changes in appearance while holding space for each other's struggles.

A MyFibroTeam Member

Yes, I'll go through periods of time where I experience thinning on top. I have to wash my hair pretty often and use a shampoo that's for babies who have cradle cap. That seems to calm the inflammation and soreness that happens. This seems to slow my hair loss and give me some time for hair to grow back. There are many lovely accounts on instagram for toppers that look amazing, so I'll just try to take things as they come. Hugs.

December 17, 2021
A MyFibroTeam Member

My hair thinning seems to be along a different path. I'm 47 and it started thinning when I was only 18. It has never grown back; my scalp is visible from the back and top of my head. I was told it was male pattern hair loss, but I think it was probably the start of my health decline, although I didn't develop Fibro until my thirties. Sometimes I get a sore scalp, when I get nerve pain in my face, it can extend to the scalp. What people are saying here about hair falling out is frightening. I have sympathy for anyone going through that. It took me some years to accept the state of my hair, but I'm in good place with it now. To experience it falling out anew would be traumatic at this stage.

December 27, 2021
A MyFibroTeam Member

YES! My hair started falling out in 2015. I get the scalp pain too. Nothing doctors have tried has worked. It's like my hair growth is stuck in the "shed" cycle.

December 23, 2021
A MyFibroTeam Member

My thinning started taking keratin so yes I am struggling with it, sorry for your struggles it is a tough issues to battle I cut my short so I could leave it down not put it up all the time hoping that would solve it feel like it help some, then I get little bumps that yes it h on my scalp from Time to time I use this Johnson Johnson it a body oil with aloe but in the bath I will put some on my hair to the scalp it helps relieve itch scalp. If that's any help.

December 17, 2021
A MyFibroTeam Member

I have that as my granddaughter done my hair and told me how much it was falling out of I have tried all sorts

January 2, 2022

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