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A MyFibroTeam Member asked a question 💭
Melbourne, AU

I’ve had a bad day. Had a couple of small seizures today where the top half of my body continually shakes back and forth
I can’t control it, can’t stop it but I’ve had what I call “matrix” head where my head feels like everything moves like neo dodging machine gun fire. Left had is flickering all over the place and my head jerks side to side or back and forth or my upper torso jerks backwards. I get all emotional as I can’t control it. Makes me feel nauseous and completely exhausts me along… read more

August 6, 2020
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Answer Summary

Members rallied around someone experiencing uncontrollable body tremors and seizures, with many urging them to seek a second neurological... Read more

Members rallied around someone experiencing uncontrollable body tremors and seizures, with many urging them to seek a second neurological opinion and explore treatment options beyond a psychosomatic diagnosis. Several members shared their own experiences with similar neurological symptoms, including one who takes Parkinson's medication for tremors despite not having an official Parkinson's diagnosis, and another whose seizures were linked to fibromyalgia rather than epilepsy. A recurring theme was the frustration of being dismissed by doctors, the challenge of navigating complex symptoms that don't fit neatly into one diagnosis, and the importance of self-advocacy and persistence in finding answers and appropriate care.

A MyFibroTeam Member

Hi Kaz, I have had a diagnosis of Epilepsy since I was 18 months old and had brain surgery to stop the seizures 20 years ago. Recently i started having light seizures at night and after explaining them to my Dr was told they were linked to Fibromyalgia not returned symptoms of the Epilepsy. Obviously every case is different but a chat to a neurologist is a smart idea. Hope you can get some support soon with the current circumstances in Victoria.

August 7, 2020
A MyFibroTeam Member

Hope everything turns out ok for you but Yeah, you need to get this checked out!

August 6, 2020
A MyFibroTeam Member

You should find a specialist to check you out. Good luck! Hope you feel better fast!

August 6, 2020
A MyFibroTeam Member

Ugh so sorry. Have you been to a neurologist? You really need to see someone! Hang in there 🤗

August 6, 2020
A MyFibroTeam Member

You too.

August 6, 2020

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