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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Breathing Problems?

A MyFibroTeam Member asked a question 💭
Kyogle, Australia

I’m new to this site so please forgive me if I do this question thing incorrectly. Does anyone have difficulty with their breathing, in particular deep breaths? When I take a deep breath, I get about half way through it and then my breath becomes staggered or shuddery, as if maybe my diaphragm is jerking and shuddering. I feel like I can’t get enough breath. It is worse of an evening but happens throughout the day as well.

June 28, 2020
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Answer Summary

Members responded warmly to someone experiencing staggered, shuddering breaths that feel incomplete, with the overwhelming consensus being to... Read more

Members responded warmly to someone experiencing staggered, shuddering breaths that feel incomplete, with the overwhelming consensus being to get it checked by a doctor for peace of mind and proper diagnosis. Several members shared their own experiences, including one who described similar breathing issues caused by high stress and anxiety (now managed with medication), and another who connected the symptom to small fiber neuropathy and its sensory effects, suggesting medications like Gabapentin and Nortriptyline. A recurring theme was the frustration of not fitting neatly into diagnostic categories, the importance of self-advocacy when symptoms are hard to explain, and the reassurance that the community is there to listen and support through the uncertainty.

A MyFibroTeam Member

Yes I did have that problem which was caused by very high stress and anxiety. I now take anxiety medication which has caused it to be less frequent.

June 28, 2020
A MyFibroTeam Member

Hi @A MyFibroTeam Member, thanks. No, I haven’t heard of it, what is it? I have tried Gabapentin and it didn’t do anything. Not sure if I’ve tried Nortriptyline though my GP says I’ve tried everything for Fibro. I know I’ve tried Amitryptiline (sorry, not sure of the spelling). Is that in the same family? It didn’t help either. I have had some success with Methotrexate. I’m still awaiting test results from an autonomic function test I had done over three weeks ago. Not sure I really understand what they are looking for there either.

June 28, 2020
A MyFibroTeam Member

@A MyFibroTeam Member
I would get that checked out, if only to give you peace of mind. I don’t have breathing problems exact, but when I yawn it doesn’t complete the yawn. That sensation you get at the back of your throat when you yawn ~ I don’t get that anymore, I haven’t a complete yawn in I can’t remember when. The deep breath part of a yawn. Hang in there ~ always here to listen!

Linda
🕊💜🕊

June 28, 2020
A MyFibroTeam Member

Could be costocondroitis

July 1, 2020
A MyFibroTeam Member

Hi there, that's great that methotrexate has helped. What is the dose that works best for you? Have you experienced any side effects to it? I'm interested in trying that. Prednisde makes me nauseous.

Autonomic function test.. What was that like? I'm interested in knowing what the results are too. Sounds like you have really tried being an advocate for yourself ... I'm proud of you since it's not easy to do whilst being so ill.

🌼⚘💞🌹💪🍀💌

June 29, 2020 (edited)

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