Answer Summary

Members with Sjogren's syndrome and fibromyalgia discussed their concerns about COVID-19 vulnerability, with several sharing they were advised... Read more

Members with Sjogren's syndrome and fibromyalgia discussed their concerns about COVID-19 vulnerability, with several sharing they were advised to limit outgoing due to compromised immune systems and nervous system differences that affect how their bodies respond to illness. One member described a harrowing experience catching COVID-19 despite having Sjogren's, developing a 104-degree fever followed by life-threatening blood clots that required ten days of hospitalization including six days in the ICU. A recurring theme was the challenge of distinguishing COVID-19 symptoms from fibromyalgia flares, as both can cause muscle pain, brain fog, and disorientation, with one member spending weeks thinking they had the virus when it was actually a severe medication reaction.