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just wondering

January 20, 2020
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Answer Summary

Members shared experiences with various medications that unexpectedly helped their fibromyalgia symptoms, including seizure medications,... Read more

Members shared experiences with various medications that unexpectedly helped their fibromyalgia symptoms, including seizure medications, Effexor for sleep, and hyoscyamine (a smooth muscle relaxer) that also relieved bladder and IBS symptoms. Several members opened up about the difficult process of discontinuing Cymbalta, describing severe withdrawal symptoms and finding support through a Facebook group called 'Cymbalta Hurts Worse,' with some comparing the withdrawal difficulty to other addictive substances. A recurring theme was frustration with the trial-and-error nature of fibromyalgia treatment, the challenge of medications losing effectiveness over time, and the need for community support when navigating difficult medication changes.

A MyFibroTeam Member

My seizure meds just happen to help my fibro as well as the effexor I take for sleep

January 20, 2020
A MyFibroTeam Member

I joined the FB page u were talking about . Thank u .

January 28, 2020
A MyFibroTeam Member

It’s good to get off of it if it isn’t working. I thought maybe my rant caused you to say “Getting off Cymbalta now. Hell” Sometimes I rant about Cymbalta because of what it did to me and thousands of others, but it’s been 3 1/2 years so I’m getting better about bitching so much😉 Cymbalta didn’t help any of my symptoms from fibro except my anxiety. It worked great for that, but after 2 years it stopped working. Are you weaning slowly? If you are on Facebook there is a closed group called “Cymbalta hurts worse” that group saved me. I went over a year without an antidepressant because of the hell I went through getting off cymbalta. But my anxiety got so bad I had to go back on one. (Remeron) Now that one has stopped working after 2 years and I’m now weaning. I hate all these damn drugs we sometimes have to take 😢

January 28, 2020
A MyFibroTeam Member

Main reason is I was so constipated that laxatives were not working . Also I still want to stay at home all time . Still in pain. Still having to take CBD oil for anxiety. The cons outweighed the pros. Getting off is a nightmare

January 28, 2020
A MyFibroTeam Member

Tramadol is the generic brand, the brand name is Ultrama. It is a pain medication. When it first came out all the doctors were prescribing it as an alternative to narcotics, they said it was great for pain and you won’t get addicted. Well, as it turns out, Tramadol is now rated up with opioids. It is now considered a controlled substance and they found out it is addictive. But all the crap they put us on is addictive in one way or another. I had a hell of a time getting off cymbalta, the withdrawals were horrible. I joined a support group to help me with the withdrawals. There were people in the group that admitted, in the past they were junkies, they said Cymbalta was harder to get off of than crack and heroin. Sorry, I’m a Debbie Downer today, been in a flare way too long 🙁

January 21, 2020

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