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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Boston, MA

Is it true fibro usually comes for 3 months and then goes for a few months.... i have had constant 24/7 of not woresning symptoms for over 6 months straight is that weird?

January 8, 2020
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Answer Summary

Members shared their experiences with the original poster's question about fibromyalgia patterns, with the overwhelming consensus being that... Read more

Members shared their experiences with the original poster's question about fibromyalgia patterns, with the overwhelming consensus being that most have never experienced true remission and instead live with constant daily symptoms that fluctuate in intensity. Several members described their fibromyalgia as progressive over time, with pain present 24/7 for years or even decades, though some noted occasional good periods where symptoms were more manageable before flaring again. A recurring theme was learning to identify personal triggers like stress, overactivity, noise, and crowds, while acknowledging that fibromyalgia affects everyone differently and there is no predictable pattern to expect.

A MyFibroTeam Member

Fibro has been found to be caused by damage to the central nervous system. The “traffic cop” cells that amplify and forward previously ignored signals from nerve endings to the brain. Researchers are finding other cell damage. Fibro isnt known to have any pattern and isn’t considered fatal but I think the depression and anxiety are badly underated.

January 8, 2020
A MyFibroTeam Member

I sometimes think the more appropriate word is dormant instead of remission. I have had years in the past when I was younger that every Fibro symptom disappeared... but it came back. I say dormant because that is how viruses behave in our systems. I believe Fibromyalgia is caused by a virus (HSV1) and it can go dormant or rear it's ugly head. I know stress causes it to get worse. My symptoms and my history with it may be totally different from other people's. It is your own journey and you just do the best you can.

January 8, 2020
A MyFibroTeam Member

I have’t had remission from fibro. Pain is constant although the pain can be worse or lessen.

January 8, 2020
A MyFibroTeam Member

dfibro🦋, mine has never gone into remission, I know some have and some haven’t. I was diagnosed 12 years ago, and is defineatly progressive.

January 8, 2020
A MyFibroTeam Member

I've never experienced a pattern of Fibromyalgia pain and symptoms for weeks or months over the many years I've had it. I have found that it can vary from day to day and flare ups can be days, weeks or months. But again, this illness affects everybody differently so your normal with it may not be somebody else's normal.

January 12, 2020

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