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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 18, 2019
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Members shared deeply personal stories about fibromyalgia suddenly appearing after major surgeries, traumatic injuries, infections like... Read more

Members shared deeply personal stories about fibromyalgia suddenly appearing after major surgeries, traumatic injuries, infections like shingles, or childhood falls, with many describing how pain that started in one area gradually spread throughout their entire body over weeks or months. Several members described the frustration of navigating conflicting or vague diagnoses, including being told they had chronic pain syndrome or central nervous system disorders instead of fibromyalgia, and the emotional toll of doctors seeming dismissive or unsure while symptoms kept shifting and multiplying. A recurring theme was the importance of tracing symptoms back to a triggering event, staying active even through pain, seeking out specialists with more resources, and finding validation and hope through finally understanding what was happening to their bodies.

A MyFibroTeam Member

You probably didn't know that you had it earlier, but after a while you will trace it back to something that happened to you. A lot of us had mononucleosis, surgeries, traumatic injuries or something else that triggers the disease. When you continue to have similar things happen, it can bring it out full fledged. It can also be a accumulation of more than one thing. It all happens to everyone differently. It's a deadly dragon just waiting to come out at anytime in your life. Good luck in your journey.

December 24, 2019
A MyFibroTeam Member

I gradually noticed all over pain with weather change, but it was occassionaly. I had major back surgery and I was slammed to the ground. It became a daily battle. Still is.

December 20, 2019
A MyFibroTeam Member

I was fine and then 1 afternoon I had a pain in my shoulder it got worse and spread as the day went on. By bed time I could not get up the stairs. The next day it was my back and legs which lasted for about 6 weeks then I had chest pains, stomach pains, head aches ect. Every few weeks I would get another symptom. I manage it better now and finding out what it was helped loads.

December 19, 2019
A MyFibroTeam Member

Thanks for the answers everyone mine seems to have come after a back injury and surgery started out just the back than gradual all these weird nuero type pain type tingling and soreness everywhere happened and got worse and worse until fibro was diagnosed

December 18, 2019
A MyFibroTeam Member

Mine, which is not called Fibro by my docs but still chronic pain everywhere and fatigue - came after a major surgery and getting Shingles while taking Immuno meds. I still take Immuno which dominates any meds I take, making most ineffective.
My Shingles stayed a few months and progressed to wide ranging chronic nerve pain (CNS issue).
It has progressed at some level for no reason but it is an ebb and flow. I try and get to the gym a few days to benefit my body and mind even if there is pain - need movement.
Good luck.

December 18, 2019

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