Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
GLOUCESTERSHIRE

I have found that when my symptoms are at their worst, my muscles tend to jerk. Mainly in my hips and upper legs. This happens so much so that I look like someone with Parkinson's. It has meant I have, at times, needed to walk with 2 sticks. During a particularly bad flare the jerking was also apparent in my upper body and my head would bob up and down. These aren't symptoms typically listed for fibro; I am wondering if anyone else has this happen?

April 29, 2017
 · 
Reactions

Answer Summary

Members strongly confirmed that muscle jerks and twitching are real symptoms of fibromyalgia, sharing experiences ranging from mild hand... Read more

Members strongly confirmed that muscle jerks and twitching are real symptoms of fibromyalgia, sharing experiences ranging from mild hand twitches that cause dropped objects to severe full-body spasms that affect daily activities and sleep. Several members described practical approaches that have helped them manage these symptoms, including medications like baclofen, chiropractic care, avoiding dietary triggers like aspartame and food dyes, and recognizing twitches as warning signs of an incoming flare. A recurring theme was that twitching often worsens during flares, after extended activity, or with weather changes, with members validating that these nerve-related symptoms are frustrating but common parts of living with fibromyalgia.

A MyFibroTeam Member

Yes I'm constantly twitching, have spasm etc it's all linked...xx

April 29, 2017
A MyFibroTeam Member

I did re.ad somewhere that these twitches are associated with Fibro. But we all know you can read that in one place and just the opposite in another. However, I do have twitches from time to time -- not bad ones or extremely jerky, just one twitch that seems to come out of nowhere. It's not like when my muscles are tired from exercise; I can usually feel those coming on. The ones I'm talking about just happen out of nowhere

April 29, 2017
A MyFibroTeam Member

Yep. My hands will sometimes do things by theirselves--let go of plates etc. but nothing as bad as that. Usually accompanied by a flair, so I figure the irritated nerves are just firing randomly--like the restletless leg syndrome that tends to go with fibro--just in other places of my body.

April 29, 2017
A MyFibroTeam Member

I had terrible twitching when my fibro was more out of control. I usually got them when I was relaxing, and one would fire on one side of my body followed immediately by another on the opposite side. The result was impressive: my body would flop on the bed, reminding me of the electric shock heart paddles lifting a body up of a gurney! Those heavy duty twitches seem to be gone, but I do still get some more mild ones that act as an aura does for a migraine-I know heavy symptoms are on their way!

April 29, 2017
A MyFibroTeam Member

I had twitching and spasms and my dr put me on baclofen and that helped to stop them.

April 29, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Mission, TX

A MyFibroTeam Member asked a question 💭
Cortland, NY

A MyFibroTeam Member asked a question 💭
Granite Falls, WA