Can We Talk Sleep Or Rather Lack Of... | MyFibroTeam

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Can We Talk Sleep Or Rather Lack Of...

A MyFibroTeam Member

For me one of Worst symptoms of this nightmare illness is the Sleep Disturbance aka Insomnia, night torture, tried everything in the book to get some etc... Does anyone else suffer Severe sleep disturbance? Every Night 😪 I have it and I'm tired And crying. Thanks Fibro warriors 😴I wish!

posted September 12, 2019
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26 replies
A MyFibroTeam Member

I've had fibro for over 30 years and have tried it all. I use a sleep number bed, really soft, to ease pressure on joints. Valerian and melatonin before bed. I discovered that insomnia wasn't really insomnia at all, but restless leg syndrome. By adding ropinerole at night, I now sleep through the night with plenty of rem and deep sleep according to my fitbit. I also use my fitbit to make sure I get between 8,000-12,000 steps in a day to help with sleep. I'm 70 and have had both knees replaced, so you don't have to be a young thing to do it.

posted November 24, 2019
A MyFibroTeam Member

Rosemary is quite right. It's an excellent relaxation exercise which I recommend be done several times a day. The deep breating stimulates the vagus nerve which initiates a stress reducing response. Cops use the deep breathing to manage their response to tense situations. The more you do it the better the your body's response. I sometimes fall asleep after sleep med when I lay down. I would advise everyone how important it is to try different things to see what works for you.

posted November 6, 2019
A MyFibroTeam Member

Trazodone help me but it made me congested in the sinuses severely It made me dizzy if I got up at night it was a no-go

posted October 23, 2019 (edited)
A MyFibroTeam Member

Sharon, maybe have the cannabis earlier as then it gets into your system,you will feel it relaxing you then curl up, another thing I was taught by my old boss, who was an opera singer, was too breathe as in you blow out the oxygen, then breathe in through your nose and out your mouth, at the same time putting brain into slow down motion! He also told me that when settled in bed start with feet, wiggle them then stretch out legs, keep coming up your body, your torso, arms, hands, give a shake, then up to neck and head, and with your head give it a flick as if you are getting rid of the things in your body that is denying your body to sleep! Now ok, yes I stood there ,thinking, ohhh what! But he was a very big man,actually reminded me of Opera singer Andre...... can’t remember his last name, but when he spoke you listened to him! So I was desperate for even a straight four hours sleep, so that night did the body thing, settled down and did the breathing, it did take a bit to get breathing right, but that night I had a good sleep,, but as I got used to it I found it worked!
Just telling you as it’s just working with your body!
Try it, I was sceptical at first, but I was at the end of flipping out, so it worked!
Bless you, I hope rest does come to you as it’s not nice. 🤗 hugs to you.

posted October 18, 2019
A MyFibroTeam Member

I take two amitriptyline an hour apart. On top of 2. Gabapentin two paracetamol 2 ibuprofen plus pramipexol for restless leg.and I have a canabis cig last thing. I go to bed at midnight always but still have trouble sleeping going to try relaxing app tonight.

posted October 17, 2019
A MyFibroTeam Member

I’ve been on Ambien for years and can’t get a good night without it. It actually help me fall asleep and stay asleep for 7-9 hours. And I’m not groggy the next day.

posted October 16, 2019
A MyFibroTeam Member

I hp aven't gone to sleep naturally since 1986. At first I assumed I was a light sleeper because the slightest noise would wake me. Wrong. I had the fibro sleep disorder. I can't sleep without medication and the best of all the ones I've tried, Ambien has been the best with no morning hangover. Adequate sleep medication is an absolute must because we don't finish REM sleep cycles which are needed to trigger restorative sleep with happens an hour before waking. The result is the extreme fatigue we always feel. Good sleep hygiene is also a must. Keeping regular hours, avoiding upsetting situations, eating at regular times, avoiding substances that make for wakefulness are all critical to your sleep. Above all an effective med are critical to attaining as close to normal sleep as we can get.

posted September 22, 2019
A MyFibroTeam Member

Yes, I close my eyes but do not sleep. I sleep after I drop off my husband to work. Nighttime is usually useless when it comes to sleep.

posted September 21, 2019
A MyFibroTeam Member

Ive listened to Christian meditations before & steve G Jones on u tube

posted September 20, 2019
A MyFibroTeam Member

I listen to mediation on my headphones. At first it didn't work so well. I persisted, l can fall asleep now. If l wake up during the night , l choose another mediation and start again. I can usually sleep through the night and wake up feeling refreshed and able to get on with my day. I have not had the horrible night tremors, nightmares and crying myself silly . Give it a try. I go to meditation once a week as well and have learnt lots of great techniques which help as well. I like the hypnosis tracks by Michael Zealey and they are free.

posted September 20, 2019

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